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You are invited to Letters to the MonSter

         https://www.youtube.com/watch?v=serV18MirGg Well, the sun is shining at last and it appears that spring is sincerely here and hinting at summer weather.         That means I need a summer project; hopefully one that I can complete. With two young adult books   in various levels of completion, you will surely tells me how ridiculous I am to start yet another writing project. but, inspiration has no rules, right?            The entire month of March MS Awareness Month led to so many awesome   avenues  of expressions, fueling  my need to share and learn with  fellow MS Warriors. So, let's hare. Let's learn. In Letters to the MonSter,  my  goal is to allow fellow Warriors to vent, scream, rant, and exorcise the  MonSter out of our lives. Let's unite in this project to erase multiple sclerosis from our lives. As Leslie Hillburn stated in the preface to my last tome to this disease, "...the ONLY place you will get any support and unde

WV MS Summit 2018: My report

On Saturday, May 5, 2018, I attended my first ever MS Summit. Held at beautiful Stonewall Jackson Resort, West Virginia, the day's events further invigorated my need to learn more about my disease.  Between the multiple Warriors, speakers, doctors, and pharmaceutical  reps in attendance, I   came away feeling a bit more positive about the care I receive.   And the vocabulary lesson! Wow!  contractures bacteroidetes nutritionists allodynia hidtocompatibility oligoclonal bands Yep, with these terms I am now an MS specialist. Of course, I first need to know exactly what they all mean; but it is exhilarating to be included  in a professional discussion concerning MS. Let's get to the part that I truly did understand.                              2018 WV Multiple Sclerosis Summit Agenda I. Eric Dunithan (nurse) and Ericka Blackwell (physician's  assistant), both from WVU medicine, addressed how to make the most of a neurological appointment.  The Take

Disability and MS: Help!

It wasn't my idea to apply for disability, but when the issue was presented to me, I decided to give a shot. Expenses are pilling up and with soon to be college bound son getting excited about the next chapter in his life, the idea of a little additional income is highly attractive. So, I   have taken the plunge and am fully engulfed in the application process.  Talk about an exercise in patience and endurance. So far I have filled out two application packets and am on the third, visited the nearest SS Office twice, been interviewed via phone three times, and just about on my last nerve as to the ridiculous and asinine procedure that this process requires. I believe this a sure fire way to discourage applicants in the first place but that carrot has been dangled and this bunny is not backing off. I understand the need for careful  consideration of any applicant for seemingly "free" funds and sincerely appreciate that this monetary assistance be awarded to those indivi

A Sea of Orange Hope

With a forecast for rain and cool temperatures, many felt the 2018 Walk for MS might be a sloppy mess; but when I arrives in Morgantown, West Virginia, I found an optimistic, celebratory atmosphere that no storm could dampen. Clouds dispersed and skies cleared, knowing that the heavens  could not compete with the storm happening on the ground at the  Waterfront. The true champions had arrived and their name was Warrior. Tents were erected, tables arranged, team shirt distributed, books stacked, (I got to share I Have MS. What's Your super Power? !!!!) acknowledgements made, participants in place, and the walk began,   with Team Tiffany in the lead. My new MS friend, Tiffany Albright, is an inspiration. she single-handedly recruited an amazing team of walkers that outnumbered any other congregation in attendance. Her numbers were amazing in monetary contributions and the enthusiasm of her teammates was more than inspiring.  Event though I did not personally join the walkers, my day

A Sea of Orange Hope

With a forecast for rain and cool temperatures, many felt the 2018 Walk for MS might be a sloppy mess; but when I arrives in Morgantown, West Virginia, I found an optimistic, celebratory atmosphere that no storm could dampen. Clouds dispersed and skies cleared, knowing that the heavens  could not compete with the storm happening on the ground at the  Waterfront. The true champions had arrived and their name was Warrior. Tents were erected, tables arranged, team shirt distributed, books stacked, (I got to share I Have MS. What's Your super Power? !!!!) acknowledgements made, participants in place, and the walk began,   with Team Tiffany in the lead. My new MS friend, Tiffany Albright, is an inspiration. she single-handedly recruited an amazing team of walkers that outnumbered any other congregation in attendance. Her numbers were amazing in monetary contributions and the enthusiasm of her teammates was more than inspiring.  Event