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The Badges of MS

It is so difficult to convince the brain to remain positive when the body refuses to cooperate. Two weeks ago I could walk unassisted, open jars with no trouble, and my bathroom emergencies were fewer and fewer. Today I feel like an invalid member of society, so it's time to pump up the positive.

Attitude is everything when dealing with a chronic illness. Not only must we learn to face our personal reaction to MS, but we are also responsible for how others perceive us. I know, I know...this is totally NOT fair. We shouldn't have to hold the hand(s) of our friends, family, and co-workers as we fight through the  ill effects of our disease.  They aren't living with MS like we are. This is where we earn our Warrior badge.

As a girl scout I did my best to complete every requirement as thoroughly as possible in order to earn the badge of the month. What an honor it was to see those badges collect on my green Mountain Laurel sash. I didn't have many because my family moved aro…

MS is not the only disease on the market.

It is so easy to get caught up in my own disease and forget the trials of others around me.This was a rather disturbing weekend. With my husband out of town, I was own mother-in-law duty. Normally that amounts to very little; but this weekend was very, very different.

Saturday afternoon she called, whispering over the phone line that she had company and she was frightened. Now, this is not the first time she has had "company", but said company has never frightened her. 

My mother-in-law is living with dementia and is practically a prisoner in her own home. She refuses to go to a nursing home and has kicked out any home help we have found for her. She forgets to eat; is constantly loosing items around the house; accuses people of entering her home and helping themselves to her possessions; often wears the same clothes for a week; and does not know one day, month, or season from the other. Other than that...she is in tip top shape.

Now, don't go off and call human resources. …

MS is not the only disease on the market.

It is so easy to get caught up in my own disease and forget the trials of others around me.This was a rather disturbing weekend. With my husband out of town, I was own mother-in-law duty. Normally that amounts to very little; but this weekend was very, very different.

Saturday afternoon she called, whispering over the phone line that she had company and she was frightened. Now, this is not the first time she has had "company", but said company has never frightened her. 

My mother-in-law is living with dementia and is practically a prisoner in her own home. She refuses to go to a nursing home and has kicked out any home help we have found for her. She forgets to eat; is constantly loosing items around the house; accuses people of entering her home and helping themselves to her possessions; often wears the same clothes for a week; and does not know one day, month, or season from the other. Other than that...she is in tip top shape.

Now, don't go off and call human resources. …

A little positive for a Hump Day

Reading over some of my most  recent posts, I got a little depressed. At first I felt sorry for the author, until I realized the author was me. Then I got a bit upset with myself for being such a downer. There is no reason for me to release such negative energy. That is just not my style; even if BIG PHARM really is behaving in such a butt-head manner. There is always an alternative and if you work hard enough, light will appear at the end of that tunnel.
Yesterday the light blazed brightly in my favor.
When I retired last June, I felt that I could no longer afford PEIA insurance and went in search of a more affordable plan. BIG mistake. Expensive lesson learned. I should have read the small, very fine print hidden on my insurance card. I had no prescription drug plan. This was an Obama Care plan. 
Distraught, especially with my recent Ampyra fiasco, I contacted multiple health insurance agencies in hopes of finding something more fashionable. Nothing. 
And then I remembered that open enro…

A little positive for a Hump Day

Reading over some of my most  recent posts, I got a little depressed. At first I felt sorry for the author, until I realized the author was me. Then I got a bit upset with myself for being such a downer. There is no reason for me to release such negative energy. That is just not my style; even if BIG PHARM really is behaving in such a butt-head manner. There is always an alternative and if you work hard enough, light will appear at the end of that tunnel.
Yesterday the light blazed brightly in my favor.
When I retired last June, I felt that I could no longer afford PEIA insurance and went in search of a more affordable plan. BIG mistake. Expensive lesson learned. I should have read the small, very fine print hidden on my insurance card. I had no prescription drug plan. This was an Obama Care plan. 
Distraught, especially with my recent Ampyra fiasco, I contacted multiple health insurance agencies in hopes of finding something more fashionable. Nothing. 
And then I remembered that open enro…