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Showing posts from November, 2020

Happy Turkey Day

I hate to keep preaching to the choir, but sometimes that’s all I can do. When living with multiple sclerosis, there is a never-ending, vicious cycle of Groundhog Day playing in my head. Unfortunately, it doesn’t star Bill Murray and is rarely amusing.   Today I’m wearing my Tao Patch again. I failed on the building up process and after two months tend to wear the product when I remember to tape it on. I know that is not the recommended protocol, but it seems to actually offer beneficial results. Whether it’s all in my head or my body is reacting to the electrical light forces I’m not sure. It doesn’t really matter in the long run. We Warriors live by our own rules many days, right?    I’ve already lost one of the three patches I initially purchased. It’s here in my house somewhere. The day it went missing wasn’t a good mobility day, so I was only in a small radius of two different rooms. It’s probably taped to the underneath of something or I’ve already sucked it up with my Sh

Can you imagine?

                               ðŸ˜“😔😞😖😢😵😶😭😣😑😒😓😕😷😯😰😱😲😳                                                               Can you imagine peeing yourself seven times in one day?  Changing your clothes each time to include shoes and socks but only after giving yourself a thorough cleaning or maybe even a full shower if you have the time?  And, if you wear an AFO, there is a frustrating amount of time and ridiculously upsetting gymnastics of removing said shoe and socks and AFO in order to remove said articles of soiled clothing so that you can begin the humiliating chore of scrubbing the bathroom floor before starting the arduous task of washing multiple loads of clothing. You learn to just allow the pissy clothes to marinate to spread out the amount of laundry you do. Now that you’ve probably exhausted your limited selection of clean clothes, it’s time to prepare the family meal which you’re too emotionally exhausted to eat. Of course, the day ends with another shower bec

A New Chapter

Our country has a new president unless Pontus 45 refuses to concede his reign. Is that truly possible? How will that work? How is the final decision reached? How does America take the bull by its horns and resolve this tantrum?  As an American citizen, I will abide by the ultimate outcome one way or another. I'm not into debate nor do I care for spirited arguments. Everyone has an opinion. That's called freedom. Freedom is what Old Glory represents. It is not my desire to disrespect our flags or our country's beliefs. The year 2020 continuously challenges our pride in being an American. What a sad commentary, but it's the truth. Our presidential candidates face some stormy days ahead, but I pray that they remember that each day is a new chapter. Each day's story will take twists in plot and controversy. Call me a dreamer. Say I live in a fantasy. Debunk the words of John Lennon all you want; I continue to imagine peace. Our story as an MS Warrior serves up a daily p

Letters to the MonSter: Election Day

                                                      Well, it's here: 2020 Election Day. Whether you're on the Blue team or the Red team, this proves to be the strangest, most stressful election in my memory. I thought 2016 was bizarre, but the hope evident at that time by the American people was much more reassuring than our current situation. There is nothing new in today's election. Where in 2016 I voted for the lesser of the two evils, today the choice is almost irrelevant.  I'm not a politician nor do I aspire to be. I grew up in a patriotic environment that is a thing of the past. I will wear my red, white, and blue sweater to the polls. I've planned an all American meal to celebrate the even: hotdogs, brownies, and vanilla ice cream. I'll treat today as a major event while recalling my first visit to the polls years ago. I'll watch my son as he ventures out of pandemic-induced isolation to cast his very first national vote. I just hate that his indoc