It's upon us. World MS Day is tomorrow, May 30, 2020. How will you recognize this day?
This will be my first public participation and you can share with me on Facebook with Headline Books Zoom into books at 4:00 PM. Am I selling something? Kind of. Do I know what I'm talking about? You bet. Will you benefit from my presentation? I hope so.
I wrote (and published) I Have MS. What's Your Super Power? in 2016, fifteen years after my diagnosis following the death of a dear friend and MS Warrior. No, she did not pass from MS, but as a result of difficulties caused by the disease. Jamie's death prompted me to finally publicly recognize my situation and become pro-active in talking about multiple sclerosis.
Since then I have participated in a variety of MS events, both fundraising and educational.
MS does not discriminate.
Men, women, children, white, yellow, black, tan, red, Scottish, Russian, German...MS has no boundaries as far as who it affects.
About World MS Day
World MS is officially marked on 30 May. It brings the global MS community together to share stories, raise awareness, and campaign with everyone affected by multiple sclerosis (MS). World MS Day activities take place throughout the month of May and in early June.
At 4:00 PM, May 30, 2020, I will be reading from my book I Have MS. What's Your Super Power? during a Zoom presentation on FaceBook. You can obtain a copy of the book from my publisher athttps://headlinebooks.com/book-author-profile/lisa-a-mccombs/
on Amazon at https://www.amazon.com/Lisa-A.-McCombs/e/B005ELC3FU?ref_=dbs_p_ebk_r00_abau_000000
Or by contacting me at email@example.com (That's where you'll get your autographed copy and a little bling from me!)
Regardless of your method of purchase, I donate a percentage to NMSS.
Multiple sclerosis (MS) is the most widespread disabling neurological condition of young adults around the world. You can develop MS at any age, but most people receive diagnoses between the ages of 20 and 50.
There are relapsing, remitting, and progressive types of MS, but the course is rarely predictable. Researchers still don’t fully understand the cause of MS or why the rate of progression is so difficult to determine.
The good news is that many people living with MS don’t develop severe disabilities. Most have a normal or near-normal lifespan.
There’s no national or global registry for new MS cases. Known figures are only estimates.
Recent findings from a National MS Society study estimate nearly 1 million people in the United States are living with MS. This is more than double the last reported number, and the first national research on MS prevalence since 1975. The society also estimates that 2.3 million people live with MS globally. About 200 new cases are diagnosed each week in the United States, says the MS Discovery Forum.
Rates of MS are higher further from the equator. It’s estimated that in southern U.S. states (below the 37th parallel), the rate of MS is between 57 and 78 cases per 100,000 people. The rate is twice as high in northern states (above the 37th parallel), at about 110 to 140 cases per 100,000.
The incidence of MS is also higher in colder climates. People of Northern European descent have the highest risk of developing MS, no matter where they live. Meanwhile, the lowest risk appears to be among Native Americans, Africans, and Asians. A 2013 study found only
4 to 5 percent of all diagnosed MS cases are in children.
Far more women have MS. In fact, the National MS Society estimates MS is two to three times more common in women than men.
Researchers and neurologists still can’t say with certainty what causes MS. The ultimate cause of MS is damage to myelin, nerve fibers, and neurons in the brain and spinal cord. Together these make up the central nervous system. Researchers speculate that a combination of genetic and environmental factors is at play, but it’s not fully understood how.
What Is MS?
Multiple sclerosis (MS) is an unpredictable disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body.https://www.nationalmssociety.org/ is probably the best online resource for facts, ideas, and current information about multiple sclerosis and disease-modifying research. Don't hesitate to visit there. I have found opportunities there I didn't even know I needed. They are there for you.
We all deal with our disease differently. You've no doubt seen the repeated sentiment "MS doesn't define me". I whole-heartedly agree, but it is up to the individual to assign a personal definition.
Admittedly, I know I need to exercise more than a few daily stretches, but do I do it? Not always. That's where pro-active supporters such as David Lyons comes in. David Lyons, the author of David's Goliath, has become my personal MS champion. David guides you through a fitness program specially designed for the MS Warrior. David and his team challenge us, communicate with us (message him...he gets right back with you!), and rewards us without the added anxiety of exercising in public. The encouragement David offers is above snd beyond.
Disclaimer: Neither of these sites should be underlined. My fingers are getting tired so I probably need to get off here for a while. Why? Because I know my limits. That's another thing David teaches: know your limits.
So, what am I doing for World MS Day 2020? I will awake tomorrow morning and meet some exercise challenges. Then at 4:00 I will join my publisher (https://headlinebooks.com/) for an on-line appearance on FaceBook where I will share my personal MS experience. Hope to see you there!
What are you doing for World MS Day?
Stay safe. Stay positive. Stay home.