I don't know about you, but most of my symptoms are invisible, as long as you're not watching me walk. Now, that's another ballgame altogether. If you read yesterday's post (and you should have. If you didn't, why not?) you know what reactions my walking gets me. (Oh, and if you believe me to be cruelly judgemental in dismissing this individual, let me add that a snarky - my new favorite word- laugh followed the comment that made the criticism even more hurtful.) But, for the most part, my MonSter likes to hide.
Even living with these invisible symptoms we must forge ahead. Meals must be prepared, laundry must be done, paying bills is a requirement, exercises must be done, and, above all, smiles must be fixed and in place for public viewing.
I know, I know... everyone gets an occasional headache. Some are excruciating. I realize that. Before being diagnosed and in my younger years I often fell slave to migraines. The difference between those (or maybe they were a precursor to the future?) is that now a headache sets off what feels like a million additional ailments:
*foot drop worsens
*vision goes from blurry to often non-existent
*balance...ha! What balance?
*incontinence...diaper me up, baby!
*noise and light sensitivity (common migraine issues, I know) are elevated
* emotional reactions are off the chart (add some cheese to that whine)
These are the times when others feel like they're doing me a favor by disappearing to allow me recoup time. Often that's a great idea, but suffering alone can also push negatives thoughts to the forefront.
If you'ore male you might (and probably will unless you too are afflicted with MS)) argue that this is a female malady for which there is no understanding or cure. Yep, that's right fellas, ya can't live with us and you can't live without us.
We know that's not true, though.
Multiple Sclerosis is a beast from the planet of Vague. There are no clear cut lines of understanding or explanation We Warriors are all different in our symptom management and descriptions, but we do stand unified in the reality of pain analysis. It's there. It's there all the time in one way or another.
...but we persevere.
Be proud. Be strong. Be a Warrior above all else. We're in this together.
The Lady with the Cane
All orders are discounted with free postage (and MS bling!) when you order directly from me here or at: firstname.lastname@example.org