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Showing posts from 2020

Happy New Year!

                      anything that can go wrong will go wrong                Sometimes, I have found, it's best to embrace Murphy's Law and get on with your day. With merely hours separating us from the end of the cruelest year in my memory, here are my words (plagiarized) to you. Looking back at the events of 2020, it is difficult to admit the positive points, but they are there buried amid the rubbish. Here is mine: 1. I was published in two anthologies. 2. I had the opportunity to enroll in two phenomenally helpful writing venues: Inkers con and Ninja Writers. 3. The MS Gym entered my life, which is extremely beneficial when I can force myself to participate:) 4. I've caught up on my reading and exhausted my Netflix list. 5. I'm developing a five year Life Goal List and plan to implement it. (Really. Honestly. Absolutely. It's gonna happen. Squirrel!) This brings me to my immediate purpose before the clock strikes midnight. I am forgoing resolutions this year in

Christmas 2020

                                                                                          Our little coal-mining town held its first-ever ATV Christmas Parade on December 12, 2020. The joy it brought to the community is still the top home town news. This is me and my handsome Fire Chief husband ready to ride.    Christmas week is here! Are you ready to make new memories in this time of ridiculousness? Are the presents wrapped? (That's my job today.) Is the fruit cake fermenting? (Does anyone actually eat that stuff?)                              MS is difficult enough, but with the stress of any added event, our symptoms magnify. It has been my goal t his year to only ENJOY the holiday season.  As I look around my cluttered living room, I know it will resemble my cozy stone cottage by nightfall and I will be enveloped in a festive atmosphere once again. 2020 has not been a year of cozy atmosphere, though, and I sid19incerely pray for those individuals who have suffered and are yet


                             πŸŽ‚ #Happy Birthday!!!!!!!!!!!!! Today, my child, my baby boy, the reason I am still here on this earth, crosses out of teenage years and becomes an official young adult. Twenty years ago today, the most important person in my life was born. Six months later, I was diagnosed with multiple sclerosis and had to make serious lifestyle and mindset decisions. It was a no-brainer. I now had the greatest responsibility known to mankind. I had to be s parent and had no time to devote to a disease of any kind.  ALL my time and energy had to be reserved for this precious gift. I hate to admit this, but if not for this child, I might have succumbed to the many temptations before me in the treatment of MS. It was a dark period in my life. Boone saved my life. I tell him that often. His existence in my life has never been a hardship, but initially, I feared the MonSter would not allow me to adequately care for him. During the introduction to my new normal, Boone shed hum

MS Blogging on a Friday

No, I am not trying to start a new use for sandwich bag ties nor do I suggest this as a new fashion. I just wanted to show you the culprit of all my walking, and balance issues. THAT TOE right there has controlled my entire body for months. THAT TOE chooses not to obey commands. It creates spasms and dictates to the rest of my foot and leg how to behave on any given day. From THAT TOE electrical sensations plague my right leg muscles and my inner ankle before sending a message up as far as my inner thigh muscles. My muscles quiver daily and not in a good way. (Sorry Fabio.) I find myself massaging my right foot and ache often in an attempt to soothe THAT TOE. I realize that it's not the TOE'S fault for my discomfort, but it's the MonSter's scape boat since I don't know what or who else to blame. I practice bending THAT TOE and curling it under to remind it where it is supposed to be and what it is supposed to do. Sometimes it's a proud little trooper showing me

MS Reading and Twitching

Did you hear the news? The first two books in my Church of Go series are only .99 on Amazon! If you're a Kindle reader, take advantage of this bargain until the end of 2020.                                                    $15.95 If your reading tastes veer more to the book-in-hand, feel the vellum of the physical page, I am offering a great deal when books are ordered directly from me. Until the conclusion of this truly fascinating year, you can purchase either book for the original price OR a combo of any two for a slashed price of $30.00. I pay the postage.                                                    $16.95 Be the envy of all your friends and get them both or any combination of the two for $30.00! Just order directly from m

MS Blogging on a Saturday

Since I've exhausted my insurance for physical therapy plus the need to isolate from Covid, I recently joined MS Gym under the guidance of Trevor Wicken. Of course, I am totally on the honor code by exercising online with no credibility other than myself; but, the cost is comparable to joining an actual gym, and all activities are catered to multiple sclerosis. My goal is to do a lesson daily, but that doesn't always work out and, even more importantly, that isn't Coach T's (as he refers to himself) purpose. His strategy is to retrain the brain with repetitive challenges specific to each individual that (over time) will provide positive physical responses to trained posture and body attitude. I agree with his strategy and want to make my virtual Coach proud, but my muscles are in constant rebellion. Since I'm paying for it, though, I must persist. Check out the MS Gym at I find

Happy Turkey Day

I hate to keep preaching to the choir, but sometimes that’s all I can do. When living with multiple sclerosis, there is a never-ending, vicious cycle of Groundhog Day playing in my head. Unfortunately, it doesn’t star Bill Murray and is rarely amusing.   Today I’m wearing my Tao Patch again. I failed on the building up process and after two months tend to wear the product when I remember to tape it on. I know that is not the recommended protocol, but it seems to actually offer beneficial results. Whether it’s all in my head or my body is reacting to the electrical light forces I’m not sure. It doesn’t really matter in the long run. We Warriors live by our own rules many days, right?    I’ve already lost one of the three patches I initially purchased. It’s here in my house somewhere. The day it went missing wasn’t a good mobility day, so I was only in a small radius of two different rooms. It’s probably taped to the underneath of something or I’ve already sucked it up with my Sh

Can you imagine?

                               πŸ˜“πŸ˜”πŸ˜žπŸ˜–πŸ˜’πŸ˜΅πŸ˜ΆπŸ˜­πŸ˜£πŸ˜‘πŸ˜’πŸ˜“πŸ˜•πŸ˜·πŸ˜―πŸ˜°πŸ˜±πŸ˜²πŸ˜³                                                               Can you imagine peeing yourself seven times in one day?  Changing your clothes each time to include shoes and socks but only after giving yourself a thorough cleaning or maybe even a full shower if you have the time?  And, if you wear an AFO, there is a frustrating amount of time and ridiculously upsetting gymnastics of removing said shoe and socks and AFO in order to remove said articles of soiled clothing so that you can begin the humiliating chore of scrubbing the bathroom floor before starting the arduous task of washing multiple loads of clothing. You learn to just allow the pissy clothes to marinate to spread out the amount of laundry you do. Now that you’ve probably exhausted your limited selection of clean clothes, it’s time to prepare the family meal which you’re too emotionally exhausted to eat. Of course, the day ends with another shower bec

A New Chapter

Our country has a new president unless Pontus 45 refuses to concede his reign. Is that truly possible? How will that work? How is the final decision reached? How does America take the bull by its horns and resolve this tantrum?  As an American citizen, I will abide by the ultimate outcome one way or another. I'm not into debate nor do I care for spirited arguments. Everyone has an opinion. That's called freedom. Freedom is what Old Glory represents. It is not my desire to disrespect our flags or our country's beliefs. The year 2020 continuously challenges our pride in being an American. What a sad commentary, but it's the truth. Our presidential candidates face some stormy days ahead, but I pray that they remember that each day is a new chapter. Each day's story will take twists in plot and controversy. Call me a dreamer. Say I live in a fantasy. Debunk the words of John Lennon all you want; I continue to imagine peace. Our story as an MS Warrior serves up a daily p