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Showing posts from 2020

swallowing and ms

Just when you think you've got all the bases covered, a different fear arises.And people wonder why we are always so exhausted. Maybe it’s because we have to work overtime all day long in order to do the things everyone else takes for granted.

This has weighed heavily on my mind lately; the way we Warriors have to consider every little movement. Foor placement is a daily issue with me. Every step requires such concentration that being in a hurry is no longer an option. 

Walking takes a tremendous amount of thought.

So does swallowing.

Check out these informative articles:

Have a great week!
Lisa, the lady with the cane…

David Lyons interview

I believe in knowing as much about your circumstance as possible. MS is an individual condition and each of us owns our disease and we manage it in a fashion that works for us.

Each story is an inspiration. Each story offers hope. Each story is supremely important for being the best of and for ourselves.

David Lyons works his story for the benefit of each and every MS Warrior. I am honored to share this insight into David's devotion to the MS World. Thank you, David, for sharing with us.

What advice do you give newly diagnosed Warriors? The advice I give to anyone diagnosed with MS is that there are 4 keys to fitness that will help them to conquer this disease. #1 mindset #2 exercise #3 nutrition #4 alternative treatments But without #1 mindset being first and foremost, the other 3 will not work well. We all have to have to remain positive and tell our bodies what we expect, not let MS tell us what it expects!  The body will do what the mind tells it to if you tell it enough times!  

A new Church of Go novel

If you enjoyed Bombs Bursting in Air,

I think you'll love the girls in my second Church of Go novel.

I've been dragging my feet, literally and figuratively, missing my self-imposed deadline of May 1 for completing second round revisions of my newest book Praise Petals; therefore I'm taking a little break from blogging until Monday, May 1. 

Please accept this preview of the said novel as an apology:

THE PRAISE PETALS: A Church of Go Novel                                                                                                      44,068 words CHAPTER ONE Snarky. If a word existed to describe Lilly Jenkins, “snarky” would be a top contender. According to Webster, snarky means “crotchety; snappish; sarcastic and irreverent.” In other words, Lilly. Besides, “snarky” was fun to say. And since there was nothing fun about Lilly, the irony was compelling. If it weren’t for her obnoxious attitude and disregard for good manners, Lilly “Godzilly” Jenkins would be beautiful. Platinum b…

Just be nice.

Today's Purpose

Today's Purpose

Does she ever stop sharing information? You ask.

Isn't there something else she could be doing? You ponder.

Will she ever stop posting about multiple sclerosis? You want to know?

Get a life! You scream at the screen.

Or not. Maybe you really do learn something from my rantings. If so, thank you and you're welcome.

I love causes. I'm crazy about projects. I need a purpose in my life and I always have a campaign in need of attention.

Currently, I am preparing to immerse myself into the findings offered in this book:

My copy is ordered. I'm anxious to learn more about Low Dose Naltrexone and it's relationship to the treatment of multiple sclerosis, among other neurological conditions.
It sounds promising.
That's all I'm gonna give you on the topic for now = official cliff hanger.

Instead, I'll let you in on today's challenge.

Today, May 1, 2020, is the first-ever #WMPitch event on Twitter. The purpose of…

It's not your job to worry about others.


Dr. Lorna Breen

Global Pandemic 2020

This morning on the Today Show, Savannah Guthrie spoke with Dr. Lorna Breen's sister concerning the importance of remembering the urgency with which medical personnel is facing.

Dr. Lorna Breen "could not sit down." After contracting the virus herself, she agreed to convalesce at her sister's home where she showed positive signs of recovery.

Dr. Lorna Breen worked on the front line where she was responsible for treating Covid patients, talking with families, watching those patients die, and notifying the families. 

Dr. Lorna Breen committed suicide.

This should not be viewed as a weakness.

Dr. Lorna Breen succumbed to the overwhelming, unbelievable, ridiculous pressure of ignoring her personal pain to protect others from the fear engulfing her. She had to be strong. She had to fake her attitude. 

Dr. Lorna Breen was selfless.

Dr.Lorna Breen was a hero.

MS Warriors are heroes. You know that. I know that.

The difference is that we can s…

Foot Drop exercises

Do you suffer from foot drop like I do? If so, today's post is for you.

Foot drop exercises help reverse the condition by retraining the brain to control dorsiflexion.
I know it looks like I'm taking short cuts for today's post (okay, caught me), but I cannot relay this important information as well as these professionals; so, please take time to click on each of the links for valuable foot drop therapy.

Excellent exercise! (personal opinion)

I don't know about you, but I must do at least a little physical therapy every day. With the closure of my particular physical therapy facility (not a result of Covid19) I'm currently winging it on my own; therefore, finding a new PT is on my post-virus to-do list (after that much-needed hair appointment!)


Virtual Walk/Zoom meeting update

Well, how did your virtual walk go? Successful?

My planned walking route:

Down the basement stairs to circle the family room before exiting the side door and into daylight.  Across the driveway o the alley road, wave at my backyard neighbor and continue up the alley (it's a steep climb) to circle around to the avenue and down to my front door where I briefly enter the living room before taking an immediate sharp left into the bedroom for a stroll around the bed and back out the door into the adjoining living room.
Into the kitchen again to detour in and out of the bathroom, into the kitchen for two circles around the middle of the room (any more and I would get dizzy), out the backdoor, down the porch steps to the attached garage to re-enter the house, up the basement steps through the living room and out the front door to take a right and walk down the avenue...whew...At this point…

Virtual MS Walk

Will you walk with me?

First-ever virtual MS Walk:

I'm not asking for donations. Rather, I am offering you a deal. 

Buy one, get one: 

BOGO $13.00 until Sunday, April 26, 2020

Virtual MS Walk and BOGO

My MS Walk was supposed to be this weekend in Morgantown, WV. I say my MS Walk as if it belongs to me. I am only a small portion of the total participation. 

If you've never attended such an event, you're missing out on a day of fun fellowship, hope, and positive energy.

MS Warriors, physical therapists, support groups, friends and family, and concerned citizens all gather to share in their support for a cause that has become very dear to me.

I participated in my first MS Walk in the 1980s, long before my diagnosis. In fact, I had no idea what MS was. As an aerobics instructor at the local wellness center, I was invited to construct a team to participate in this fundraiser located at our state capital. It sounded like a great girls' weekend. 

We petitioned our friends and colleagues for donations and set off on a walk…

MS Pain Scale

I'm a solid 2 today but I am enjoying the idea of being a 3. Wine chilling in the fridge.

Happy Friday! Stay well. Stay positive. Stay home.

Lisa, the lady with the cane

Need vs Want

OMG! He followed me. He never does that.

I am an early riser. I love my crack of dawn time. This is when I stretch, groom the cat, and WRITE. 

Not this morning. My husband, who never gets out of bed before 8AM unless he has an appointment (since his work layoff, compliments of Covid19) arose with me at 6:15 AM and is now reading the paper with the overhead lights fully lit. Of course, he insists on reading articles to me and sharing thoughts about today's news.

How dare he infringe pon my quiet time. I really don't need this attention.

Or, do I?

There is a fine line between need and want. I feel that I need a haircut and a manicure, but do I really? Or do I just want whose grooming pleasures? I don't think there is a factual need for tailored hair and pretty fingernails. No one has ever died from a lack of perfected personal appearance. At least I don't think that's ever happened. 

In fact, the first thing my husband said to me this morning is that my (bedhead) hair look…

Some good news/Some bad news: It's Your Choice

Good morning, Warriors! According to the latest televised news reports, some states in our nation are entertaining a reopening soon. Good news.

Now let's balance that out. There is a meat shortage in America. Bad news.

Now might be a good time to go vegetarian. Except for the fact that fresh produce is being dumped daily. With schools closed across the USA, an over-abundance of fruits and vegetables are wasted with no avenue to follow. Bad news.

All that waste saddens me. If my family has learned nothing else from this horrible, horrible time, it is to waste nothing. We eat the leftovers of leftovers until every crumb is consumed before preparing the next big meal. Good news for me since I don't like to cook. If I was single, my kitchen would contain the absolute minimal: teabags, yogurt, peanut butter, a few pieces of fruit. 

I'm not really concerned about food. I love to eat if someone else prepares the food, but my palate doesn't require much. Good news.

One thing I sinc…