Skip to main content

Letters to the MonSter


Image result for images of monsters




Dear MonSter,
What would you say if I told you I think it’s time to kick you to the curb? You are no longer welcome in my life. You need to leave me alone, find a new host, because I am simply tired of your existence. You’ve become a parasite. You live off my pain. You zap my strength and interrupt my day. Simple tasks require abnormal amounts of time to complete the most simplistic chores.

Because of you I am constantly dropping things; spilling and spending extra time cleaning up unnecessary messes. I want to get through a day without exerting energy that could and should be better spent on production.

You make me late for engagements. Your greed robs me of a social life and imprisons me when others are out and about.  And, as you know, invitations cease after multiple refusals. No one wants to hang out with a party poop-er with a cane.

Crowded venues are frustrating. No matter how hard I try to make myself “small”, it is difficult to hide from critical eyes. Whether it is my cane, my drunken walking gait, the AFO on my right leg, or the fact that I am honestly in the way, large groups of people are not my friend. Even small gatherings are uncomfortable. Probably even more so; Intimate gatherings invite conversation and unwanted questions. Believe it or not, I do not want to speak to my condition. Few understand anyway.

Steps are not an option for more than one reason. In my case, foot drop makes steps impossible, dangerous, exhausting, and just not worth the effort.  Wheelchairs, walkers and most afo’s are not compatible with flights of stairs.  I don’t think I need to spend any more time addressing this obvious issue, but it’s all thanks to you, dear MonSter.


You annoy me. I hate you. You need to go away.






Recent book review 5 star book review: I was recently diagnosed when I got this book. It really helped me to accept the possibilities of my “new” normal. It was refreshing to read about someone that wasn’t trying to sell me a snake oil cure, and just telling the story of her own life and the changes in it due to “the monster.” Excellent read. Definite thumbs up.




https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?keywords=i+have+ms.+what%27s+your+superpower&qid=1556457191&s=gateway&sr=8-1-fkmrnull
A portion of all sales is donated to NMSS



Want more insight on living with multiple sclerosis? This is a great deal!


Frequently bought together

Total price: $51.05
Buy the selected items together

Comments

Popular posts from this blog

World MS Day

World MS Day 2019 ... City Hall Belfast turned Orange on World MS Day ... Here's to all the Warriors living with Multiple Sclerosis in the world ... Stay Strong Warriors


https://www.facebook.com/photo.php?fbid=2406855022878111&set=a.1970807053149579&type=3&eid=ARDhRnphD_AJI4zplWIUuHEqeDDKShvISmoCX-qH2o1xUPfBTLf6s4_SglXdFIKpeuDbDYRpFkwt92Ji












https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?keywords=i+have+ms.+what%27s+your+superpower&qid=1556457191&s=gateway&sr=8-1-fkmrnull

Post semi-panic

I rarely panic where my health is concerned. I mean, what is there left that I haven't experienced thus far living with the MonSter? 

[Screech...rhetorical question...don't really want to know the answer.]

But, I had a moment last week and bowed to my inner devil's advocate.

Thank goodness I have an excellent medical cheerleader in my camp. Ericka Blackwell may not be a fully credentialed neurologist, but  her compassion and interest is sincere and vastly more professional than many licensed neurologists I have met on this journey. So, she scheduled  an appointment  and sat patiently with me while we hashed out my current questions regarding my MS.

My biggest concern lately is the fact that my right (foot) toes (big toe and little one beside it) have been curling up painfully on a daily basis, further hampering the annoying foot drop that rules my world. Well, guess what? There is a muscle relaxant called Baclofin that is basically side-effect free that will help me with this.…

There is no GPS for MS

I have always been a rather trusting person. I believe that when someone tells me they are going  to do something in particular, I believe them. Until they renege on their promise; and then  they no long exist to me.I don't mean I hate or thwart them. That person just no longer holds my interest.

The same with 21st century technology. In today's advanced world of communication, it is imperative that we place our  trust in helpful devices like microwaves, electric garage door openers, and this wonderful invention called GPS (Global Positioning System/ Satellite). What a marvelous thing to be able to type in an address and be taken there, step-by-step. We will never be lost again!

Wrong.

If you are frequent reader of Lady with the Cane, you know that my son is starting university this fall. A lover of all things academic, I KNOW I am more excited than he, so while he is off doing summer things Mom is reliving her glory days with visits to his soon-to-be new home and reacquainting h…