Skip to main content

A person with MS walks into a bar...



                       No photo description available.

,,,especially when looking for a restroom.




Once the initial reaction(s) of being diagnosed with MS is over, we Warriors are left to fend for ourselves...forever. If you're not living with the disease, it is no longer personal to many of those around you.

While we are busy arranging our lives around our new companion, the MonSter, loved ones seem to melt back into a daily routine that does not include being ever mindful of furniture arrangement, allowances for extra time to prepare for events, medication schedules, nd bathroom locations.

Bathrooms...the very topic on my mind

We all know that knowing the exact location of public facilities is paramount to a Warrior's existence. Every second counts when thinking about visiting the loo...every second. You know what I mean.

Because I am not and never will be of the male species,  I am addressing the female species when I write this. Every. Second. Counts.

The urge hits out of no where. "Didn't I just go? It's got to be a false alarm."

I stumble to the bathroom, furiously unbuttoning my pants and begging myself first silently and then with growing intensity as if my bladder is listening. Just one more step...trousers down to my knees...I'm gonna make it...But the toilet seat is up... the curse of living in a predominately male household.

In the second it takes to close the lid all hope is lost. The gate is open and the flood unleashed.

Of  course this incident does not just require an immediate clean up of the floor and any rugs or articles near the site, but I am now a mess as well. My pants, my underwear, socks, shoes, and (in my case) my AFO...soaked. 

Have you ever tried to remove a pair of trousers when wearing an AFO? It is not a simple task. The shoes must be removed first. Remove any support straps,and then socks while trying to peal your soiled leggings off your body. It is not a quick job. Nor a pleasant one...and that's just what you do when this happens at home. I'll let you imagine a public pee event...

Knowledge of bathroom location is crucial in the life of a Warrior.

And toilet lid placement is essential. So if you a guy living with a female MS Superwoman, please be sweet and lower the seat. It is not a guarantee that you have save your lady friend immense humiliation, it certainly helps.

When I was much younger I told myself that I would never succumb to elastic waistbands as a fashion mainstay...amazing how our perspectives change. It makes bathroom emergencies somewhat better and, fortunately, fashion able "leggings"  and elastic waist ed trousers seem to be making a splash on the domestic run-way. I even found nice lower body apparel at LL Bean! Unfortunately, the Bean doesn't offer Walmart prices, so I'll save up until I can afford at least one pair...

I could, and probably will (at another time), write pages upon pages about my personal war with bathroom issues, but for now I need to attend to a few more pertinent Monday morning chores. The bathroom owns too much of my daily  thoughts already; but, I'm sure you'l hear more on the subject at a later date. Right ow I have a date with an unfinished manuscript.

Have a great week,
Lisa, The Lady With the Cane







https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?keywords=i+have+ms.+what%27s+your+superpower&qid=1556457191&s=gateway&sr=8-1-fkmrnull

Comments

Popular posts from this blog

CBD and MS

We warriors are a resilient breed. After speaking extensively with a CBD enthusiast over the weekend, i finally bit the bullet and bought the "good" stuff...all in the name of research. Things have changed a bit since my first CBD experience, including the flavor. This particular product comes in natural (an earthy flavor), peppermint (self-explanatory), and cinnamon (Yum!).Because particular brand (Hempworx) has ONLY two ingredients : CDB and hemp seed oil.  

I decided to document my experience here, so if any of you are interested we can discuss our personal journeys. As you all know, MS is an expensive condition that requires careful thought to additional treatments and related expenditures, most of which are not recognized by insurance companies and/or medical professionals; so, every experience is a financial gamble.

I started my new "treatment" on Saturday, October 26, 2019. The instructions direct you to take two-three drops under the tongue twice a day for th…

L 300

Good Monday!

Big do-in's last week in my MS World.

After wearing myself out with my petty pink leg, I finally got brave and called Hanger Clinic to inquire about the L300 Walk Aid.

Several years go I was fitted for an older version but when insurance did not recognize the device as a necessary medical item, my  hopes were dashed and I gave up.

On a whim I renewed my interest to discover a newer model called the L300. Where the original device required a shoe insert AND a leg cuff, the L300 is just a cuff. So, of course I figured this would be even MORE expensive. But, I made an aoppointment any way.

The certificated orthopedist clinic owner encouraged me to contact my insurance to inquire again. Guess what? With the medical code he gave me as well as a letter of authorization, insurance will pay 80%! It is still a bit pricey but I think I can wing this!

I just hope this is the route for me. With the assistance of Walk Aid, I can wear regular shoes or even go bare foot!  I know it will r…

There is no GPS for MS

I have always been a rather trusting person. I believe that when someone tells me they are going  to do something in particular, I believe them. Until they renege on their promise; and then  they no long exist to me.I don't mean I hate or thwart them. That person just no longer holds my interest.

The same with 21st century technology. In today's advanced world of communication, it is imperative that we place our  trust in helpful devices like microwaves, electric garage door openers, and this wonderful invention called GPS (Global Positioning System/ Satellite). What a marvelous thing to be able to type in an address and be taken there, step-by-step. We will never be lost again!

Wrong.

If you are frequent reader of Lady with the Cane, you know that my son is starting university this fall. A lover of all things academic, I KNOW I am more excited than he, so while he is off doing summer things Mom is reliving her glory days with visits to his soon-to-be new home and reacquainting h…