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Showing posts from October, 2019

CBD and MS

We warriors are a resilient breed. After speaking extensively with a CBD enthusiast over the weekend, i finally bit the bullet and bought the "good" stuff...all in the name of research. Things have changed a bit since my first CBD experience, including the flavor. This particular product comes in natural (an earthy flavor), peppermint (self-explanatory), and cinnamon (Yum!).Because particular brand (Hempworx) has ONLY two ingredients : CDB and hemp seed oil.   I decided to document my experience here, so if any of you are interested we can discuss our personal journeys. As you all know, MS is an expensive condition that requires careful thought to additional treatments and related expenditures, most of which are not recognized by insurance companies and/or medical professionals; so, every experience is a financial gamble. I started my new "treatment" on Saturday, October 26, 2019. The instructions direct you to take two-three drops under the tongue twice a

Bioness L300 Go

 Bioness L300 Go I did it. I'm done. Fingers crossed. I mailed my letter of appeal this morning. As much as I appreciate my pink leg, the thought of strengthening my muscles while wearing normal shoes is exciting.                                                             Order direct: and get free postage. I will donate 20% of all sales to the NMSS.

What if you could completely cure your MS?

                                          What if you could cure your MS? Have you ever fantasized about this? I mean, I often wish I could still run, walk in a straight line, control my bladder, swim with the no fear of drowning, or hold a writing utensil long enough to write a check. I often find myself thinking "oh, I used to be able to do that" when witnessing someone skip up a fight of steps or moving around on a dance floor. So, yes, if I could cure my MS, I would dance again, hike again, swim again...and I would not miss The Monster at all. That's the obvious answer to the question, right? After reading Mona Sen's article, I have been shown a more appropriate perspective on my reality. The cure probably won't happen in my lifetime, so I (we)need to learn from Mona's attitude. What if I Were Cured of My Multiple Sclerosis? I’d love to go back to relapsing-remitting MS, but I stop short at wanting to be completely cured.  By  Mona Sen

A person with MS walks into a bar...

                        ,,, especially when looking for a restroom. Once the initial reaction(s) of being diagnosed with MS is over, we Warriors are left to fend for ourselves...forever. If you're not living with the disease, it is no longer personal to many of those around you. While we are busy arranging our lives around our new companion, the MonSter, loved ones seem to melt back into a daily routine that does not include being ever mindful of furniture arrangement, allowances for extra time to prepare for events, medication schedules, nd bathroom locations. Bathrooms...the very topic on my mind We all know that knowing the exact location of public facilities is paramount to a Warrior's existence. Every second counts when thinking about visiting the loo... every second.  You know what I mean. Because I am not and never will be of the male species,  I am addressing the female species when I write this. Every. Second. Counts. The urge hits out of no where.

Letters to the MonSter

Dear MonSter, What would you say if I told you I think it’s time to kick you to the curb? You are no longer welcome in my life. You need to leave me alone, find a new host, because I am simply tired of your existence. You’ve become a parasite. You live off my pain. You zap my strength and interrupt my day. Simple tasks require abnormal amounts of time to complete the most simplistic chores. Because of you I am constantly dropping things; spilling and spending extra time cleaning up unnecessary messes. I want to get through a day without exerting energy that could and should be better spent on production. You make me late for engagements. Your greed robs me of a social life and imprisons me when others are out and about.  And, as you know, invitations cease after multiple refusals. No one wants to hang out with a party poop-er with a cane. Crowded venues are frustrating. No matter how hard I try to make myself “small”, it is difficult to hide from critical eyes.

letter of appeal x3

This week I will add (hopefully) one more support letter to my appeal to the insurance company in regard to their denying a request to aid  in the payment of the L300 Go.  After my PT evaluation on Monday, I fear it may be too late for this walking device to help in reactivating the muscle in my right leg. Any progress realized in prior PT sessions has gone south. My right hip is weak, weak, weak. What has that to do with my leg muscle, you might ask.  Everything. What the upper body cannot support effects the lower body and vice versa. All of our body parts work together to create a fully functioning unit. My body parts are obviously not communicating and communicating properly. And then there is the possibility that I am undergoing a "relapse", a "flare", or whatever it is we call the event of heightened MS symptoms. I wouldn't be surprised. My personal life hasn't necessarily been fun lately. Yesterday I messed up the date on a nail appointment