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Do something nice for yourself




No matter how long I live in the company of the MonSter, I never get used to it. I get tired of pushing through the day on legs that will not move and feet that cannot feel. 

After treating myself to a gentle yoga class this morning, I could barely move. I forced myself to ride the stationary bike to further stretch my frozen calf muscles and things loosened up a bit, but for the rest of the day I have felt half-baked. My toes continue to curl and my arms are just useless.

Tomorrow I get to bowl (yippee) and just wonder if I can even make it to the bowling alley. I don't figure anyone would miss me, but I refuse to give in to this beast. Even if it means falling flat on my face to the ridicule of an entire bowing alley. Just another day in the life...

On a lighter note, look what our MS Warriors in Belfast, Ireland, do for themselves.  Looks like a neat idea.
                   

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It isn't always easy to feel worthy of self-indulgence, but it is really important. I did something for myself yesterday. I finished my letter of appeal to the insurance company regarding coverage for the Bioness L300.

Here's a link if you care to read it. Comments, suggestions, advice, all are welcome.

C:\Users\Dell 7020\Documents\letter of appeal.docx





Do something nice for yourself this week. I'd advise steering clear of gentle yoga class for a while:)  





https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?keywords=i+have+ms.+what%27s+your+superpower&qid=1556457191&s=gateway&sr=8-1-fkmrnull


I Have MS. What's our Super Power is now in Kindle format!

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Have a pint or two.

Although the final day of MS Awareness is hours away, MS never leaves. Help me help MS Awareness. See you later.



Have a pint in honor of MS Awareness Month. Author Lisa McCombs will be present at 1PM and will read from her award winning book I Have MS. What's Your super Power? at 2PM. A percentage of book sales is donated to the National MS Society.

Short Story, Rivesville, West Virginia.



https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?crid=3UUGZO89HYHTV&keywords=i+have+ms.+what%27s+your+superpower&qid=1553952850&s=gateway&sprefix=I+Have+MS.%2Caps%2C137&sr=8-1-fkmrnull


I'm back just in time for my MS Walk

Hello, hello, hello!!!!!

I'm back!

It has been a very long week without my computer. Yes, I know, anti-techie me, I really said that. I never realized how much I depended on my pooter until I didn't have it any more.

I was unable to review books on Readers Favorite. 

I couldn't address emails properly.

I couldn't write this blog and I really, really missed that.

I couldn't play my Facebook games or look up ridiculous trivia for which I only care.

I DID knit a lot, though; which means I binge watched a lot of Netflix (Have you seen The Chilling Adventures of Sabrina?); which means I snacked a lot; which means my jeans no longer fit comfortably...

Oh, well, it is what it is...

Isn't it interesting how all the elements of our daily life often fall into these unplanned yet strategically organized patterns? :Some good. Some not so good.

Well, I find that is exactly how it is with multiple sclerosis. MS is NOT predictable even when we try to force it's awkward shape into o…

I can walk!!!!

Yes, once again I am guilty of plagiarism. This is just too good not to share.
Even though I am smart enough to know the truth of my latest findings, the actuality of my experiment is crazy exciting.
End result: I can walk!!!!!!!

https://www.nationalmssociety.org/About-the-Society/News/Study-Finds-Exposure-to-Organic-Solvents-Smoking Study Finds Exposure to Organic Solvents, Smoking and MS Genes Interact to Increase Risk of Getting MS July 3, 2018 SUMMARY
A study of more than 2,000 people with MS in Sweden suggests that people who had occupational exposure to organic solvents and certain MS susceptibility genes were much more likely to develop MS than those without MS genes.In addition, they found significant additive effects such that having MS genes along with exposure to solvents and cigarette smoking created a 30-fold increased risk of developing MS.ALERT!!!!!!!!!!  “Avoidance of cigarette smoke and unnecessary exposure to organic solvents, particularly in combination, would appear rea…