Skip to main content

Multiple Sclerosis Awareness Month 2019


                                                 

        Multiple Sclerosis Awareness Month 2019

 It might be officially the last day of MS Awareness Month, but I, like thousands of others, I am aware of it EV-ER-Y DAY. Just because our country promotes awareness during this particular month doesn't mean that all around the world various cultures and societies aren't drawing attention the MonSter. Author Barbara Stensland in the UK tells us that they recognize the week of April 22-28 as MS Awareness Week. (Missed her interview? See March 20 post.)


Stumbling In Flats by [Stensland, Barbara]
     https://stumblinginflats.com/   

After contacting some folks in Ireland, I am led to believe that their fund raising remains publicity active year round. Good for them.                                           

Want to know what's going on around the world with MS? It isn't that difficult to find out if you're not intimated by social media.

Any leprechauns out there? Check out this group:
https://www.facebook.com/MultipleSclerosisIreland/

How about our Asia population? Here's a good place to start:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6002494/

MS is not just about countries. Ethnicity isn't exempt:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4404283/

How about Iceland and MS?
https://multiple-sclerosis-research.org/2015/05/ms-in-iceland/
http://www.emsp.org/about-emsp/


Are there scientific facts that determine a geographical area prone to neurological conditions? Read more:

https://www.nationalmssociety.org/What-is-MS/What-Causes-MS/Clusters

Basically we are everywhere. The MonSter is not particular. Race, ethnicity, age, gender, Pepsi or Coke drinker, the demon we live with daily doesn't care for any of that.


  
                            Flags of the World tree stock vector clipart, Flags of the World tree: countries participants of Soccer Cup 2010. Vector file available. by Cienpies Design

We share similar fears, insecurities, and disappointments.

Raise your hand if you HATE MRIs. Here's some good news:

https://www.everydayhealth.com/columns/trevis-gleason-life-with-multiple-sclerosis/good-news-those-not-fond-time-mri-tube/?eh_uid=84927051&slot=0&xid=nl_EHNLms_2019-03-30_16424407&utm_source=Newsletters&nl_key=nl_living_with_multiplesclerosis&utm_content=2019-03-30&utm_campaign=Living_With_Multiple_Sclerosishttps://www.everydayhealth.com/columns/trevis-gleason-life-with-multiple-sclerosis/good-news-those-not-fond-time-mri-tube/?eh_uid=84927051&slot=0&xid=nl_EHNLms_2019-03-30_16424407&utm_source=Newsletters&nl_key=nl_living_with_multiplesclerosis&utm_content=2019-03-30&utm_campaign=Living_With_Multiple_Sclerosis


Every year during my month long forage into multiple sclerosis, I learn so much. This year  has not disappointed. Not only have I met my personal goal of a monetary donation to NMSS, I have been contacted by some valuable folks in connection with THE disease. I don't care if I sound a little star struck, but here goes: NMSS followed Lady with the Cane on twitter!  

                                YES, CLICK HERE NOW:

            https://www.youtube.com/watch?v=3GwjfUFyY6M

I don't mind telling you that being recognized by the BIG house is rather uplifting. Every time I receive and read a copy of Momentum, I believe that my health experiences are far too insignificant to be published in such a national forum. Being on NMSS radar reassures me that we Warriors are not just a number.

My confidence has been brushed.

Wellness Aromas has also contacted me to promote their product on my blog. It isn't a business agreement or anything like that. They just recognized the blog as an avenue for reaching a different audience for their product.

So, I will be highlighting the uses/benefits of essential oils on MS symptoms with input from:
Julien Heron
Founder of Wellness Aromas
www.wellnessaromas.com
http://www.wellnessaromas.com/

So, if you interested in learning more about essential oils, now is the time to tune in. If you use essential oils for MS symptoms, I want to hear about it.

The biggest thing I learned this month, though, is that people really 
do care. Thanks to the following for supporting this quest:

Barbara Stensland
Jennifer Kriner
Marion County Public Library

Connie VanGilder
Barnes and Noble
The Tea Shoppe at Seneca Center
Craft Connection
Short Story Brewery
Marion County Family Resource Network

Thank you to all who read Lady with the Cane,,,,,, but didn't let me know:) Stop being shy. I wound love to hear from you. The more the merrier.

Just because the month is over doesn't mean the writing stops...it will just happen a bit more sporadically.



Comments

  1. I was diagnosed with multiple sclerosis in 2005, and I was 40. They put me on Rebif which I took until 2008 and was switched to Copaxone. I had two relapses on Rebif, none on Copaxone. I noticed my balance getting worse, and my memory, as well as muscle spasms. I'm 54 now, In Febuary this year my neurologist referred me to Organic Herbal Clinic, i immediately started on their natural organic MS Herbal treatment. I had a total decline in all symptoms including the balance, fatigue, muscle spasms, Pain, excessive urination and others. Visit Organic Herbal Clinic web page ww w. organicherbalclinic. c om. The MS treatment totally reversed my Multiple Sclerosis condition and most amazingly i can go about my daily activities!

    ReplyDelete

Post a comment

Popular posts from this blog

CBD and MS

We warriors are a resilient breed. After speaking extensively with a CBD enthusiast over the weekend, i finally bit the bullet and bought the "good" stuff...all in the name of research. Things have changed a bit since my first CBD experience, including the flavor. This particular product comes in natural (an earthy flavor), peppermint (self-explanatory), and cinnamon (Yum!).Because particular brand (Hempworx) has ONLY two ingredients : CDB and hemp seed oil.  

I decided to document my experience here, so if any of you are interested we can discuss our personal journeys. As you all know, MS is an expensive condition that requires careful thought to additional treatments and related expenditures, most of which are not recognized by insurance companies and/or medical professionals; so, every experience is a financial gamble.

I started my new "treatment" on Saturday, October 26, 2019. The instructions direct you to take two-three drops under the tongue twice a day for th…

L 300

Good Monday!

Big do-in's last week in my MS World.

After wearing myself out with my petty pink leg, I finally got brave and called Hanger Clinic to inquire about the L300 Walk Aid.

Several years go I was fitted for an older version but when insurance did not recognize the device as a necessary medical item, my  hopes were dashed and I gave up.

On a whim I renewed my interest to discover a newer model called the L300. Where the original device required a shoe insert AND a leg cuff, the L300 is just a cuff. So, of course I figured this would be even MORE expensive. But, I made an aoppointment any way.

The certificated orthopedist clinic owner encouraged me to contact my insurance to inquire again. Guess what? With the medical code he gave me as well as a letter of authorization, insurance will pay 80%! It is still a bit pricey but I think I can wing this!

I just hope this is the route for me. With the assistance of Walk Aid, I can wear regular shoes or even go bare foot!  I know it will r…

World MS Day

World MS Day 2019 ... City Hall Belfast turned Orange on World MS Day ... Here's to all the Warriors living with Multiple Sclerosis in the world ... Stay Strong Warriors


https://www.facebook.com/photo.php?fbid=2406855022878111&set=a.1970807053149579&type=3&eid=ARDhRnphD_AJI4zplWIUuHEqeDDKShvISmoCX-qH2o1xUPfBTLf6s4_SglXdFIKpeuDbDYRpFkwt92Ji












https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?keywords=i+have+ms.+what%27s+your+superpower&qid=1556457191&s=gateway&sr=8-1-fkmrnull