Skip to main content

MS Speak

Thirteen more days until MS Awareness Month. 

I know, I know; enough with the countdown already. This is big thing for me , though. Instead of badgering folks every day of the year with my MS speak, I save that for March, for two reasons:
1. March is MS Awareness Month (Betcha didn't know that.)
2. March is my birthday month; so I get to talk about what ever I want for the entire month. (Sure took ownership of that, didn't I?)

 And I want to talk about MS. Not just my MS, but the MonSter in general. 

                             Image result for multiple sclerosis pictures

Multiple Sclerosis is so very unpredictable, as I am certain you all know or are learning. Just when I thought that extremely warm temperature is my biggest enemy, the recent extreme dip in temps has me staved up as if I ran a marathon without training. It's awful. If I do not stretch every day, sometimes several times throughout the day, I have limited mobility tripled from my normal complaint. Right now I am seated at my desk with my legs twined around one another in an attempt to stretch away the spasticity that I am experiencing. Right down to my toes, which I constantly flex and curl to release the tightness that insists on hanging out with me this morning.

I promised myself that I would resume my early morning yoga routine that I know works well for me, but it just isn't fitting into my day any more. And this is where I must Image result for stop sign image.



Just like I allowed my exercise routine to dwindle to a twice a week PT session, I am guilty of bowing to the repercussions of the MonSter; and that is not good. In fact, that is very, very bad.

With the changes and additions to our multiple sclerosis, the emphasis on awareness is a priority we all must address. What happens or doesn't happen today may or may not happen tomorrow, or in ten minutes, or in a week. Pay attention to your MS. Learn from mistakes and changes in your life style. Make the necessary changes. Add the helpful actions, no matter how it affects your schedule. Folks, face it, we Warriors are the guinea pigs in MS research. We know how we feel. We learn through experimentation what to alter in our lives. We are the experts and on what research is based. A lot of physicians just don't get it, so it's up to us to enlighten the masses.

Example? I have learned recently through self-practice, that coffee is a HUGE culprit in my incontinence. I have never really been a coffee addict, but I enjoy a tasty latte or cream lightened cuppa. I have always been more of a tea fan. My husband loves his coffee, though, so when he is home in the morning, I brew a pot and we drink until it is gone and sometimes make another.

But, guess what? Those are the days I don't want to leave the house for fear of an accident. It is not just over consumption. It seems any java intake puts me in a panic mode for the rest of the day. So, I try to be smart about it. I drink plenty of water before, sometimes during, and definitely after I drink my coffee. Of course that puts me in the loo as well, but at least I keep myself cleaned out instead of loading up for a possible UTI.

My point? Stop talking the big talk and do something about the things we can control. Keep track of your MS. Know what sets it off, what makes it feel better, what we need to avoid. I need to avoid coffee. I also need to exercise more often. Today I vow to stop knowing what I need and start doing what I need. (After  I clean the bathroom, which really, really needs my attention.)

As far as the exercise goes, check out the Face Book page The MS Gym. Trevor Wicken is sure to motivate you. This site is free, the downloads are free, his advice is free. So free up a couple of minutes to take advantage of this FREE resource. I think you will enjoy the family of MS Warriors who gather here.

No judgement. Just encouraging encouraging energy.

https://themsgym.mykajabi.com/p/ms-gym-fb-group-intro?fbclid=IwAR3VTA2rm-8OtwYaRhzTPwYpsw2MJ7vIQnte_QHVZk350cL38Ay6J83wZDc


And if you need more motivational words, don't forget our reading assignment: Girl, Wash Your Face by Rachel Hollis. Don't wait for my review. Read it now and we'll talk next week.

Have a great weekend!
Lisa, The Lady with the Cane


Comments

Popular posts from this blog

Alien feet?

Okay, so after my initial reunion with social media, I naively imagined today to be more productive. But, no...

For someone who doesn't spend much time perusing sites like Pinterest, my interest has suddenly piqued to the point that addiction be a possibility.

Hoping to find someone of like mind, I instead downloaded a slipper pattern I might knit for Christmas presents (oops, there goes the surprise). It looks fairly simple. Let me know if you give it a try.
https://www.pinterest.com/pin/538250592959842993/

And, then, I found this really neat yoga flow outlined for me.
Since yoga seems to be the go-to exercise for us Warriors, I decided to share. That way we do not have to invent our own personalized routine. You're welcome.




Then, I discovered an entire page of memes that put MS in perspective to the causal reader-reluctant  on-looker. And because  this figure is essentially in the child pose... well, you get the picture.

Of course, any information on foot drop always attracts my at…

MS and children

FDA Approves First Treatment for Pediatric MS On May 11, 2018, Novartis announced that Gilenya® (fingolimod) was approved by the United States Food and Drug Administration (FDA) for the treatment of children and adolescents, ages 10 through 17, with relapsing multiple sclerosis (MS). This is the first disease-modifying therapy (DMT) to be approved for this form of the disease in this age group. Known as “pediatric MS,” nearly all of those diagnosed have the relapsing form of the disease. Children also experience approximately two-to-three times as many relapses as an individual with adult-onset MS. A clinical trial comparing Gilenya to Avonex® (interferon beta-1a) in children and adolescents found that those treated with Gilenya saw an 82-percent reduction in their annualized relapse rate over a period of up to two years. Please see MSAA's online news article, "FDA Approves Gilenya® for Pediatric MS,"for more information. If links are disabled in this email, please copy a…

You are invited to Letters to the MonSter

https://www.youtube.com/watch?v=serV18MirGg

Well, the sun is shining at last and it appears that spring is sincerely here and hinting at summer weather.    That means I need a summer project; hopefully one that I can complete. With two young adult books   in various levels of completion, you will surely tells me how ridiculous I am to start yet another writing project. but, inspiration has no rules, right?
           The entire month of March MS Awareness Month led to so many
awesomeavenues of expressions, fueling my need to share and learn with 
fellow MS Warriors. So, let's hare. Let's learn. In Letters to the MonSter, 
my goal is to allow fellow Warriors to vent, scream, rant, and exorcise the  MonSter out of our lives. Let's unite in this project to erase multiple sclerosis from our lives. As Leslie Hillburn stated in the preface to my last tome to this disease, "...the ONLY place you will get any support and understanding in dealing with me (MS) is with Other People wi…