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This is how I feel

Why do we pretend so much? Is it pride? Is it because it' easier to project a more "normal" existence than to bow to the demands of this ridiculous disease? 

Or do we live in a contestant cloud of denial? If I ignore it long enough it will go away?

For several weeks now I have been experiencing a weird, weird, weirder than weird symptom of spasticity (I must have invented that word, 'cause every time I type it, I am reminded to correct it. Oh, well...)or cramping or whatever in my right foot. Th toe right beside the big one keeps curling under until it has begun to control the entire right side of my body. Whatever that toe wants, it gets. 

There are times when it feels that I am actually walking on the wrong side of said appendage. I am beginning to believe that this is mostly due to the use of my AFO. It never happened until I insisted on wearing that pretty pink leg
every day, all day.  (Of course that is NOT the shoe I wear with it. If you want to talk shoes and AFO…

AFO advice

A shout out to all AFO wearers:

Summer is in full swing. It's HOT outside. I really can't "play " outside without my pink leg and vaca is coming up. Which means: croquet tournies, fishing, corn hole, four-wheeler rides... heat exhaustion...

I currently wear a white compression knee sock under my AFO, but it gets rather warm and uncomfortable. But, I need to separate my skin from the unforgiving plastic. 

Are there any other easy alternatives out there?

Talk to me.

Stay cool, 
Lisa




https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?keywords=i+have+ms.+what%27s+your+superpower&qid=1556457191&s=gateway&sr=8-1-fkmrnull

Relieving the MS Hug

Hope this work for you!

Have a great weekend,
Lisa










https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?keywords=i+have+ms.+what%27s+your+superpower&qid=1556457191&s=gateway&sr=8-1-fkmrnull

There is no GPS for MS

I have always been a rather trusting person. I believe that when someone tells me they are going  to do something in particular, I believe them. Until they renege on their promise; and then  they no long exist to me.I don't mean I hate or thwart them. That person just no longer holds my interest.

The same with 21st century technology. In today's advanced world of communication, it is imperative that we place our  trust in helpful devices like microwaves, electric garage door openers, and this wonderful invention called GPS (Global Positioning System/ Satellite). What a marvelous thing to be able to type in an address and be taken there, step-by-step. We will never be lost again!

Wrong.

If you are frequent reader of Lady with the Cane, you know that my son is starting university this fall. A lover of all things academic, I KNOW I am more excited than he, so while he is off doing summer things Mom is reliving her glory days with visits to his soon-to-be new home and reacquainting h…

Post semi-panic

I rarely panic where my health is concerned. I mean, what is there left that I haven't experienced thus far living with the MonSter? 

[Screech...rhetorical question...don't really want to know the answer.]

But, I had a moment last week and bowed to my inner devil's advocate.

Thank goodness I have an excellent medical cheerleader in my camp. Ericka Blackwell may not be a fully credentialed neurologist, but  her compassion and interest is sincere and vastly more professional than many licensed neurologists I have met on this journey. So, she scheduled  an appointment  and sat patiently with me while we hashed out my current questions regarding my MS.

My biggest concern lately is the fact that my right (foot) toes (big toe and little one beside it) have been curling up painfully on a daily basis, further hampering the annoying foot drop that rules my world. Well, guess what? There is a muscle relaxant called Baclofin that is basically side-effect free that will help me with this.…

World MS Day

World MS Day 2019 ... City Hall Belfast turned Orange on World MS Day ... Here's to all the Warriors living with Multiple Sclerosis in the world ... Stay Strong Warriors


https://www.facebook.com/photo.php?fbid=2406855022878111&set=a.1970807053149579&type=3&eid=ARDhRnphD_AJI4zplWIUuHEqeDDKShvISmoCX-qH2o1xUPfBTLf6s4_SglXdFIKpeuDbDYRpFkwt92Ji












https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?keywords=i+have+ms.+what%27s+your+superpower&qid=1556457191&s=gateway&sr=8-1-fkmrnull

Inner Peace

It has been one rough school year! But, it is over...for now.

Graduation has come and gone; college application is complete; summer job secured; we will  sign up for his first semester classes on Friday...Now, we just wait.

Not only am I in need of inner peace, but my son is struggling to find his as well. Sickness, appointments, confusion, anticipation...
I am so glad I survived those days  long ago and can concentrate on enjoying the spoils I have received. 

He will not be attending his first choice university, but that is okay. I really believe good will come of this if he just gives it a chance. One year...that is all I ask. It's virtually a free ride and time to re-evaluate his future goals. 

As anyone knows who has lived with a teenager, it is difficult to live with someone who is certain that he knows it ALL. I remember being there myself and hating myself for being such a pain. But it is a necessary stage in life. I fervently apologize to my parents for being such a pseudo-geni…

Following the Cheerio Trail

Crunch!

Didn't I just sweep this floor? What on earth am I stepping on?

When my son was a toddler, I could often find him by tracking the trail of circular cereal pieces the dog hadn't got to first.

Years later, we no longer have a dog but the trail still exists. In three short months my Cheerio eater will be off to life in a dorm room. I hope his room mate is understanding or maybe sympathetic to this situation. Even more, it is my wish that said son will begin picking up after himself. An equally slavish roomie might be therapeutic but an obsessive cleaner could further enable this behavior. Six of one/ half a dozen of the other. Whatever...it will no longer be my problem.



For a brief second I entertained the idea of thoroughly remodeling my boy's rooms once he vacates it for a higher education, but the closer that gets the more I mourn his absence. I know I am not alone and it will come as no surprise that my brain is flooded with "just yesterday" memories of my p…

Happy May!

Happy May 2019

I have kept a journal all my life, probably since I could grasp a writing utensil. I have chronicled favorites, disappointments, personal goals and resolutions, vacations, major life events, books read, movies watched...you name it. When I discovered I was pregnant eighteen years ago, I started a journal for my child. I wrote to her/him every day with important medical facts connected to pregnancy, doctor visits, and news worthy events of the day. My first ultrasound photo is tucked within the pages of an early  journal. A formula bottle label and the hospital baby bracelet is scotch  taped to a page. 

As the years have progressed my child's collections of Mommy journals have grown to an entire shelf above my desk. Lists of accomplishments (his and mine) have replaced new born and toddler announcements. I have tried to highlight everything that he may forget or not remember as a landmark or important moment.

Unfortunately the older he gets, the less I tend to write and…

I'm back just in time for my MS Walk

Hello, hello, hello!!!!!

I'm back!

It has been a very long week without my computer. Yes, I know, anti-techie me, I really said that. I never realized how much I depended on my pooter until I didn't have it any more.

I was unable to review books on Readers Favorite. 

I couldn't address emails properly.

I couldn't write this blog and I really, really missed that.

I couldn't play my Facebook games or look up ridiculous trivia for which I only care.

I DID knit a lot, though; which means I binge watched a lot of Netflix (Have you seen The Chilling Adventures of Sabrina?); which means I snacked a lot; which means my jeans no longer fit comfortably...

Oh, well, it is what it is...

Isn't it interesting how all the elements of our daily life often fall into these unplanned yet strategically organized patterns? :Some good. Some not so good.

Well, I find that is exactly how it is with multiple sclerosis. MS is NOT predictable even when we try to force it's awkward shape into o…

Help yourself to be a better YOU

It has been a rough eight months and it's effects are very telling on my poor MS body. Since the beginning of the school year, nothing seems to have fallen into place for my son's senior year. He started it off by having his wisdom teeth extracted and subsequently spending a week at home recovering. Next came a sinus infection that left him drained. He had Mono last year and the immune system is still trying to catch up.

By now it is the end of October and we're counting down the days until Thanksgiving break and BANG! The unbelievable happens. Miller Fisher Syndrome ( a rare form of Guillain-BarrĂ© syndromehttps://www.ninds.nih.gov/Disorders/Patient.../Guillain-BarrĂ©-Syndrome-Fact-Sheet) attacks out of no where and school takes a back seat for TWO MONTHS. We spent a week in hospital undergoing many ridiculously painful tests and procedures before returning home for him to be home schooled until the New Year. In between all this mess, several disappointing events occur that …

Multiple Sclerosis Awareness Month 2019

Multiple Sclerosis Awareness Month 2019It might be officially the last day of MS Awareness Month, but I, like thousands of others, I am aware of it EV-ER-Y DAY. Just because our country promotes awareness during this particular month doesn't mean that all around the world various cultures and societies aren't drawing attention the MonSter. Author Barbara Stenslandin the UK tells us that they recognize the week of April 22-28 as MS Awareness Week. (Missed her interview? See March 20 post.)

https://stumblinginflats.com/

After contacting some folks in Ireland, I am led to believe that their fund raising remains publicity active year round. Good for them.                                           

Want to know what's going on around the world with MS? It isn't that difficult to find out if you're not intimated by social media.

Any leprechauns out there? Check out this group:
https://www.facebook.com/MultipleSclerosisIreland/

How about our Asia population? Here's …

Have a pint or two.

Although the final day of MS Awareness is hours away, MS never leaves. Help me help MS Awareness. See you later.



Have a pint in honor of MS Awareness Month. Author Lisa McCombs will be present at 1PM and will read from her award winning book I Have MS. What's Your super Power? at 2PM. A percentage of book sales is donated to the National MS Society.

Short Story, Rivesville, West Virginia.



https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/ref=sr_1_fkmrnull_1?crid=3UUGZO89HYHTV&keywords=i+have+ms.+what%27s+your+superpower&qid=1553952850&s=gateway&sprefix=I+Have+MS.%2Caps%2C137&sr=8-1-fkmrnull


The best MS Blogs

As we near the end of MS Awareness Month, I struggle to keep the tears at bay. For an individual living with MS, purpose is everything. My purpose is to keep moving, constantly encourage, and look for ways to improve my life and the life of other Warriors.

I've come to love my little blog and the personal therapy it offers me in it's attempt to smooth over the absence of physical friendships. MS is a lonely disease. It is an expensive disease and it is not very friendly. 

I am by no means a professional blogger and I know very little about anything computer related, so I doubt seriously that blogging will ever earn me an income; but, that is not my purpose. 

I just want to share any and every little scrap of kindness I can. So...if you enjoy Lady with the Cane, I KNOW you will want to check out these awesome award winning MS Blogs.

https://www.healthline.com/health/multiple-sclerosis/best-blogs-of-the-year#1


You're welcome,
Lisa, The Lady with the Cane

I can walk!!!!

Yes, once again I am guilty of plagiarism. This is just too good not to share.
Even though I am smart enough to know the truth of my latest findings, the actuality of my experiment is crazy exciting.
End result: I can walk!!!!!!!

https://www.nationalmssociety.org/About-the-Society/News/Study-Finds-Exposure-to-Organic-Solvents-Smoking Study Finds Exposure to Organic Solvents, Smoking and MS Genes Interact to Increase Risk of Getting MS July 3, 2018 SUMMARY
A study of more than 2,000 people with MS in Sweden suggests that people who had occupational exposure to organic solvents and certain MS susceptibility genes were much more likely to develop MS than those without MS genes.In addition, they found significant additive effects such that having MS genes along with exposure to solvents and cigarette smoking created a 30-fold increased risk of developing MS.ALERT!!!!!!!!!!  “Avoidance of cigarette smoke and unnecessary exposure to organic solvents, particularly in combination, would appear rea…