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If you like MS, you might love MS...The Pinterest irony.

If you like MS, you might love MS...

As a rookie Pinterest user, I am fascinated with the wealth of information, viable or not, that is shared n this site. The research is pretty much done for you. Not only do people go cray sharing sites and ideas, but the computer itself offers additional "likes", which is great. Unfortunately, a computer cannot measure the human aspect of language.


Personal knowledge of this very real truth came several years ago when the West Virginia State Board of Ed decided that scoring/evaluating student writing would best be done electronically rather than by actual English teachers. Remember the writing assessment? Every summer one hundred teachers from around the state  camped together in some pre-destined place of comfort for a week of unbiased "grading." Not only did this offer a much needed stipend for the participating teachers, we learned a great deal about the students of WV, we formed a kinship of like-minded people, gained insight into what we needed to do as instructors to improve student writing, and ULTIMATELY offered a first hand, personal assessment.
But then the 20th century turned into the 21st and computers took over.

OOPS! Let me get off my soap box and get back on topic.

Oh, yeah, Pinterest...

I couldn't help taking a double take or three at the notification  I received on my phone the other day...obviously not scoured by human eyes:

If you like MS, you might love MS...

See the irony here?

Of course you do. An advanced degree in English is not necessary to understand the semantics of this heading.

Of course, I do NOT like MS, but I do like the posts offered under that search topic.

For instance, today, I learned of an easy, at-home exercise routine recommended for MS Warriors. Check it out:

  • Water Aerobics: Cardio Workout

    2 / 11   Water Aerobics: Cardio Workout

    Working out in a pool can be a great physical activity for those with MS. Swimming, water walking, and water aerobics can be adapted to a broad range of MS symptoms, from mild to severe, says Amy Rauworth, a registered clinical exercise physiologist in Birmingham, Alabama, and the associate director of NCHPAD.
    “Use water weights, wet belts, noodles, and other pool equipment to get an effective cardio workout,” she says. Aim for about 30 minutes of aerobic activity at least three to four times a week.
    Overheating can worsen MS symptoms, so make sure the water in the pool isn't too warm. The National Multiple Sclerosis Society recommends a water temperature between 80 and 84 degrees F.

  • 3 / 11   Wall Squats: Strength Training

    Strength training should be part of your MS exercise plan, and these wall squats will strengthen your leg muscles.
    • Stand about a foot away from a wall, with your back to the wall.
    • Lean back so your shoulders, torso, and hips are flat against the wall.
    • Slowly slide down the wall, bending your knees and keeping your upper body flat against the wall so that your thighs are parallel (or nearly parallel) to the floor.
    • Hold for about five seconds and then push with your legs to return to the starting position.
    Begin with about five repetitions until you familiarize yourself with the movement and youknow how far down you can slide and still push up with good form. If your knees bother you, don't slide down as low.
    Hand weights can be added to this exercise. "But I would recommend starting with no weights until you feel comfortable doing 10 to 12 repetitions," says Ruth Luketic, a former information specialist at NCHPAD.
  • Planks: Core Strengthening

    4 / 11   Planks: Core Strengthening

    Planks are a good exercise for strengthening your core muscles — the abdominals, the obliques, and the back, says Kelly Bonner, an exercise physiologist and information specialist at NCHPAD.
    • Lie facedown on the floor or an exercise mat.
    • Prop yourself up on your elbows and toes, keeping your body straight from the crown of your head to your toes. Elbows should be directly under your shoulders.
    • Tilt your pelvis and contract your abdominal muscles to prevent your rear from sticking up.
    • Hold for 10 to 15 seconds.
    • Return to the starting position and rest for 10 to 15 seconds.
    • Repeat three to five times. Increase to 20 seconds as you get stronger.
  • Modified Planks and Russian Twist: Safer Core Strengthening

    5 / 11   Modified Planks and Russian Twist: Safer Core Strengthening

    Traditional planks are tough for many people. If they are for you, try modified planks (pictured here), Luketic suggests.
    • Lie facedown on the floor or an exercise mat.
    • Prop yourself up on your elbows and your knees.
    • Keep your body straight from the crown of your head through your torso to your knees.
    • Hold this position for 10 to 20 seconds.
    • Repeat three to five times.
    The Russian twist is a seated exercise that also strengthens your core muscles, which help you maintain good posture.
    • Sit comfortably in an armless chair or on a bench. Lean back slightly, engaging your abdominal muscles.
    • Bend your elbows and hold your hands together in front of your body. Inhale.
    • As you exhale, move your hands in a controlled manner to your right hip, then to your left.
    • Begin with five repetitions on each side and increase to 10 then 12.
  • The Bridge: Multi-Muscle Conditioning

    6 / 11   The Bridge: Multi-Muscle Conditioning

    This exercise is great for conditioning your legs, glutes, lower back, and abdominal muscles.
    • Lie on your back, with your arms at your sides.
    • Bring your feet in toward your butt, keeping your feet flat on the floor.
    • Contract your stomach muscles, pulling your belly button in toward your spine.
    • Exhale as you lift your hips by tightening your butt muscles. At the top of the movement, your body should form a diagonal line from your knees to your chest.
    • Pause briefly and then inhale as you return to the starting position.
    • Work up to 10 to 12 repetitions.
  • Wall Push-ups: Upper-Body Strengthening

    7 / 11   Wall Push-ups: Upper-Body Strengthening

    Wall push-ups are upper-body exercises that help build strength in your triceps, pectorals, and deltoids. This exercise can be done in a standing or seated position.
    • Stand or sit approximately two feet away from a wall, facing it with feet together.
    • Place your hands flat on the wall. Your arms should be straight out, at shoulder height and slightly more than shoulder-width apart.
    • Lean toward the wall, keeping your elbows tucked in to your sides, until your nose almost touches it.
    • Hold this position and focus on your posture. You should feel a slight stretch in your calves (if standing) and in your upper chest. Check that your body is in a straight line from head to toe if you're standing or your back is straight if you're seated.
    • Slowly return to your starting position.
    • Repeat three to five times.
  • Overhead Press: Upper-Body Strengthening

    8 / 11   Overhead Press: Upper-Body Strengthening

    This upper-body strengthener can help make everyday tasks — like getting dishes down from a high shelf — easier, notes Bonner.
    • Stand or sit with good posture, making sure to keep your head up and back straight.
    • Start with both arms out to the side, elbows bent and hands at about ear height.
    • Using some light dumbbells or soup cans, extend your arms up, above your head (so that your biceps are close to your ears).
    • Then bring them back down to starting position.
    • Work up to 10 consecutive reps.
  • Marching in Place: Balance Training

    9 / 11   Marching in Place: Balance Training

    Balance training for MS is particularly important, Luketic says. When you march in place, you'll challenge your balance by shifting your weight from side to side.
    • Stand with your feet hip-width apart, abdominal muscles firm. If needed, use a counter or chair to steady yourself.
    • Slowly bend your right knee, raising your right foot off the floor, and bring your leg to a marching position. Your thigh should be about parallel to the floor.
    • Pause for three seconds and then slowly lower the leg.
    • Repeat with your left leg.
    • Continue until you've completed five repetitions, then switch to your right leg.
    • Work up to 10 to 15 repetitions with each leg.
  • Lunges: Lower-Body Strengthening

    10 / 11   Lunges: Lower-Body Strengthening

    Lunges are great lower-body exercises that build up the strength in your quads, hamstrings, and ankles while simultaneously improving your balance. To perform a lunge for the first time, make sure you do it near a sturdy piece of furniture or a countertop that you can use for support if you need to. (If you're having significant balance issues or trouble walking, notes Bonner, it would not be appropriate to try lunges.)
    • Step forward with one leg, dropping the opposite knee until it's a couple of inches from the ground. Your front leg will also bend at the knee. Both knees should be at about a 90-degree angle.
    • Return to the upright position and switch legs.
    • Repeat, working up to 10 times with each leg.
  • More on Exercising With MS

    11 / 11   More on Exercising With MS

    Physical activity counters muscle weakness and prevents your heart and lungs from having to work hard at rest. Exercise also helps with weight management for people with MS and improves mood by causing the release of feel-good endorphins.
    For the best results, get some exercise on most days of the week. But to prevent burnout and injury, it's important to pace yourself.
    “You'll need to adjust your exercise routine to how you’re feeling each day,” Kushner says. "And you'll have to tweak your program if you’re coming off an exacerbation or if you’re not having a good day.”



  • So, even with it's obvious lack of human editing, Pinterest is a very human tool. Whoa! Another irony???
  • What I do NOT find ironic about Pinterest is it's absolutely profound wealth of information...about any topic imaginable. 

  • Choosing a treatment for my MS has been rather taunting, especially since on my first go-round of disease modifying drugs I was not really offered much of a preference. Not that I'm complaining. The summer I was diagnosed is still kinda sketchy in my mind. If they had told me the best medical treatment for me was swim naked twice a day in a tub of ice water, I might have considered it.


  • But, now that I have a choice, the responsibility has become immensely heavy on my brain and after being "drug free" for three years, I refuse to avoid it any longer. As I notice an alarming progression my condition, I am reminded daily that the ball is in my court and waiting for further instruction.

  • With that said, I have finally decided to go with Gilenya. I do not plan to preach  the merits of this or any other drug (they're all bad), but I believe the deciding factor is that Gilenya is the first FDA approved therapy for pediatric MS.  I mean...who would administer a drug to  child if it wan't a positive thing?

  • Regardless, at this point I have nothing to loose even if the side-effects are rather disturbing. Aren't they all? (You can do your own research on that:)


Back to the issue...

After much debate, I have decided to use Gilyena. It is the only FDA approved medication for pediatric MS use. No, I am not a child and, yes, I realize that; but who would give a child something as invasive as a modifying medication if it wasn't safe. Please don't argue with me here.  I've had all the indecision and conflict I can take for this decade. Besides if I continue to weigh my options, another century will have elapsed. It's time.



And just when I begin second guessing myself again), I find this:
http://moderndayms.com/2018/01/what-to-expect-with-first-dose-of-gilenya/

FDA Issues Warning for MS Patients Taking Gilenya - Multiple Sclerosis

https://www.gilenya.com/index.jsp

So, all will be fine. Every MS treatment is a leap of faith and  I am truly a leaper.  The only true experts on multiple sclerosis are the Warriors and without our constant experimentation and medical  cooperation, the folks with the actual degree  cannot proclaim "Mystery Solved".

Have a great week!
Lisa, Lady with the Cane


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