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Archives for 2018
Reading about the MonSter
Before I was diagnosed in 2001, I had no idea what MS meant. As an exercise enthusiast and aerobics instructor, my adventures had taken me and my step class to walk for MD, MS, ABCDEFG. What did those letters mean? Were all these alphabet diseases related? didn’t only hold people get them? Were they all a death…
Swimming with the Miller Fisher
So sorry I’ve been gone for so long. Here’s my excuse. I never thought it possible, but there is actually a medical condition stranger than you, dear MonSter: Miller Fisher Syndrome. https://www.ninds.nih.gov/Disorders/All-Disorders/Miller-Fisher-Syndrome-Information-Page On Wednesday, October 31, my son awoke with double vision, numb fingers and an overall sense of unbalance. He persevered, though, and headed out to…
Letters o the Monster: disability woes
Certain that I am preaching to the choir, I am pissed that said choir is the very cause of my angst. I am pretty certain that several of you have filed for and (hopefully) received disability due to the MonSter. This is something that I never really thought of as a possibility for me. Up…
What are you doing for breast cancer awareness?
breast-cancer/beyond-awareness#1 It is so very easy to fall into the “me” rut of MS. We live with it every second of every day. It is our personal MonSter. As Warriors, we fight to bring awareness to this often unseen disease. We constantly remind the public that there is actually a person behind that brave smile. We fight…
Letters to the MonSter: Gilenya Day 4
Four days in and no side effects or ill results of my new med journey. On Tuesday, September 25, at 8:45 AM, I swallowed my first dose of Gilyena after undergoing an EKG. For the next six hours my new friend Eric monitored my heart rate every hour. with my kitting in my lap and my mother at…