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Italian doctor may have found surprisingly simple cure for Multiple Sclerosis and it's not spaghetti and meatballs.

Here it is, another alphabet nomenclature to accompany our own alphabet disease. We can add CCVIS, or Chronic Cerebro-Spinal Venus Insufficiency, to our growing list of abbreviations related to MS.

Not only does MS "get on my nerves", it evidently restricts blood flow to my brain. Dr. Paolo Zamboni, an Italian neurologst, may have found the solution. Read on...

An Italian doctor has been getting dramatic results with a new type of treatment for Multiple Sclerosis, or MS, which affects up to 2.5 million people worldwide. In an initial study, Dr. Paolo Zamboni took 65 patients with relapsing-remitting MS, performed a simple operation to unblock restricted bloodflow out of the brain – and two years after the surgery, 73% of the patients had no symptoms. Dr. Zamboni’s thinking could turn the current understanding of MS on its head, and offer many sufferers a complete cure.
Multiple sclerosis, or MS, has long been regarded as a life sentence of debilitating nerve degeneration. More common in females, the disease affects an estimated 2.5 million people around the world, causing physical and mental disabilities that can gradually destroy a patient’s quality of life.
It’s generally accepted that there’s no cure for MS, only treatments that mitigate the symptoms – but a new way of looking at the disease has opened the door to a simple treatment that is causing radical improvements in a small sample of sufferers.
Italian Dr. Paolo Zamboni has put forward the idea that many types of MS are actually caused by a blockage of the pathways that remove excess iron from the brain – and by simply clearing out a couple of major veins to reopen the blood flow, the root cause of the disease can be eliminated.
Dr. Zamboni’s revelations came as part of a very personal mission – to cure his wife as she began a downward spiral after diagnosis. Reading everything he could on the subject, Dr. Zamboni found a number of century-old sources citing excess iron as a possible cause of MS. It happened to dovetail with some research he had been doing previously on how a buildup of iron can damage blood vessels in the legs – could it be that a buildup of iron was somehow damaging blood vessels in the brain?
He immediately took to the ultrasound machine to see if the idea had any merit – and made a staggering discovery. More than 90% of people with MS have some sort of malformation or blockage in the veins that drain blood from the brain. Including, as it turned out, his wife.
He formed a hypothesis on how this could lead to MS: iron builds up in the brain, blocking and damaging these crucial blood vessels. As the vessels rupture, they allow both the iron itself, and immune cells from the bloodstream, to cross the blood-brain barrier into the cerebro-spinal fluid. Once the immune cells have direct access to the immune system, they begin to attack the myelin sheathing of the cerebral nerves – Multiple Sclerosis develops.
He named the problem Chronic Cerebro-Spinal Venous Insufficiency, or CCSVI.
Zamboni immediately scheduled his wife for a simple operation to unblock the veins – a catheter was threaded up through blood vessels in the groin area, all the way up to the effected area, and then a small balloon was inflated to clear out the blockage. It’s a standard and relatively risk-free operation – and the results were immediate. In the three years since the surgery, Dr. Zamboni’s wife has not had an attack.
Widening out his study, Dr. Zamboni then tried the same operation on a group of 65 MS-sufferers, identifying blood drainage blockages in the brain and unblocking them – and more than 73% of the patients are completely free of the symptoms of MS, two years after the operation.
In some cases, a balloon is not enough to fully open the vein channel, which collapses either as soon as the balloon is removed, or sometime later. In these cases, a metal stent can easily be used, which remains in place holding the vein open permanently.
 Dr. Zamboni’s lucky find is yet to be accepted by the medical community, which is traditionally slow to accept revolutionary ideas. Still, most agree that while further study needs to be undertaken before this is looked upon as a cure for MS, the results thus far have been very positive.
Naturally, support groups for MS sufferers are buzzing with the news that a simple operation could free patients from what they have always been told would be a lifelong affliction, and further studies are being undertaken by researchers around the world hoping to confirm the link between CCSVI and MS, and open the door for the treatment to become available for sufferers worldwide.
It’s certainly a very exciting find for MS sufferers, as it represents a possible complete cure, as opposed to an ongoing treatment of symptoms. We wish Dr. Zamboni and the various teams looking further into this issue the best of luck.

Although the Multiple Sclerosis Association of America 
claims that there is no conclusive evidence that CCVIS exists as a clinical disorder linked to multiple sclerosis, 
Canadian Dr. Anthony Traboulsee continues to take a 
serious look at the possibility of narrowing blood veins 
to eliminate multiple sclerosis. Dr. Traboulsee isn't as certain 
as Dr. Zamboni on the authenticity of CCVIS,but he hasn't 
discarded the existence.

To read further, engage the following link.

The more research I do, the more convinced I realize that neurologists are just as bamboozled with MS as are their patients. Sometimes I get SO frustrated with my neuro visits. I report the same symptoms again and again. I tell the same story and recite identical answers to medical questions month after month. 

Initially I believed that my doctors were not listening to me. The person who held the secret ingredient to my improvement wasn't really interested in my welfare.

Now I realize that they are very good actors. They are just as frightened as I am. They are helpless but they do not want to relay that insecurity to me.

So, while I fight the symptoms and consequences of multiple sclerosis, I am actually aiding in the research of MS. Research is a cause and effect game that requires multiple participants (guinea pigs). This participation is necessary. We Warriors are an intricate piece of this quest to understand MS. 

It is necessary for our neurologists to ask the same questions and be advised of our ongoing status of existence in order to better understand the MonSter inside us. When I think about it this way, I feel much more empowered. The medical world needs me as much as I need them. 
So, on future neuro visits do not get discouraged with the same ol' routine. You know the one. The good doctor peers in your eyes with that little flashlight as you stare off into the distance. You play the drunken touch-your-nose-with-each- finger game and attempt to walk a straight line across the floor. A metal thingy is scraped across the arch of your foot to test the reflexes. You are coached on recommended pharmaceutical treatments and scheduled for your next MRI. You confirm your next appointment, treat yourself to a little lunch and then go home to fight with the insurance company;
Because multiple sclerosis is an EXPENSIVE disease. (Don't get me started on the war between insurance coverage and life enhancing prescriptions. We could be here for a while.)

Okay, enough with the negative vibes.
On the flip side of this rant, I am going to pop my morning Ampyra (waiting for financial assistance because I cannot afford the $1,200 a month habit) and think about eating Italian cuisine for lunch.

Spaghetti anyone?

Have a wonderful day. Hope your spring morning is warmer than this one in West Virginia,

Watch these videos related to MS.

Totally unrelated, but a seriously lovely children's book by my friend and fellow WV author Diana Walker. Check it out!


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