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Showing posts from July, 2013

Shoes, Drop Foot, and MS

I love shoes. I have always loved shoes. I read somewhere that every woman needs to have at least one pair of red shoes in her possession and, being of the straight A mentality, I actually had five pair of red shoes at one time: red Keds, red leather sandals, red pumps, red clogs, and red flip flops. I am not your stereotypical girlie-girl, but I DO like my shoes. And I love expensive shoes, but my interest also gravitates toward style so the thrill of a Saturday BOGO event is not out of the question. At one time I could not comprehend my colleagues reluctance to wear a nice professional pair of pumps to school. I did. And of course those pumps matched perfectly with purse and skirt. You know, we girls have our priorities. Then finding the right shoe was exciting. There is nothing more sexy than a female calf pumped up with a 3 inch stiletto. Well, that was definitely then. Finding the right shoe for someone with a MS induced drop foot is more than exciting. It's a relief. I no lon

Shoes, Drop Foot, and MS

I love shoes. I have always loved shoes. I read somewhere that every woman needs to have at least one pair of red shoes in her possession and, being of the straight A mentality, I actually had five pair of red shoes at one time: red Keds, red leather sandals, red pumps, red clogs, and red flip flops. I am not your stereotypical girlie-girl, but I DO like my shoes. And I love expensive shoes, but my interest also gravitates toward style so the thrill of a Saturday BOGO event is not out of the question. At one time I could not comprehend my colleagues reluctance to wear a nice professional pair of pumps to school. I did. And of course those pumps matched perfectly with purse and skirt. You know, we girls have our priorities. Then finding the right shoe was exciting. There is nothing more sexy than a female calf pumped up with a 3 inch stiletto. Well, that was definitely then. Finding the right shoe for someone with a MS induced drop foot is more than exciting. It's a relief.

The awful truth about MS and your diagnosis...

Having received and read a plethora (I love that word. It's fun to say.), of responses to my last post    I feel the need to share the one BIG and awful truth about MS. Diagnosed in 2001 six months after the birth of my only child and smack dab in the  middle of a failed marriage, I laid all of my faith in the medical professionals to "fix" me and my situation. AT the time I was under the care of an extremely compassionate neurological intern who did his best to ease my fears and take time to talk to me ANY time I wanted. That wonderful man has since moved of the area and is not available for me now. Any question he could not answer, he immediately researched an got back to me. I wish he was still my doctor today... What I took from this experience, though, is that there ARE no answers. Every time I visit my neurologist, he asks me a thousand questions that I have answered over and over again only to discover that it is up to me to find the answer. I experiment with what

The awful truth about MS and your diagnosis...

Having received and read a plethora (I love that word. It's fun to say.), of responses to my last post    I feel the need to share the one BIG and awful truth about MS. Diagnosed in 2001 six months after the birth of my only child and smack dab in the  middle of a failed marriage, I laid all of my faith in the medical professionals to "fix" me and my situation. AT the time I was under the care of an extremely compassionate neurological intern who did his best to ease my fears and take time to talk to me ANY time I wanted. That wonderful man has since moved of the area and is not available for me now. Any question he could not answer, he immediately researched an got back to me. I wish he was still my doctor today... What I took from this experience, though, is that there ARE no answers. Every time I visit my neurologist, he asks me a thousand questions that I have answered over and over again only to discover that it is up to me to find the answer. I experiment with wha

Let's be frank about MS.

Death from ‘Complications’ of Multiple Sclerosis: The Unspeakable Bits from a Life With MS By   Trevis Gleason   Jul 30, 2013   2   Comments When we first started writing the “ Unspeakable Bits ” blog, I resolved not to candy-coat the difficult parts of living with  multiple sclerosis . I’d always intended to open the conversation about end-of-life and MS. I decided to broach the subject now, in the wake of the recent passing of our fellow “MSketeer,” Annette Funicello . Social media sites erupted with kind words and remembrances of the actress. Soon, however, confusion began to set in as Disney’s press release attributed her death to “complications from multiple sclerosis.”  When a Canadian television  video of her last days  was broadcast as a remembrance, confusion became fear and concern. My greatest fear when the dark days have me thinking about MS is that it might get “that bad,” but I must admit that I didn’t really know what that means. What does “advanced MS” look like?  How d

Let's be frank about MS.

Death from ‘Complications’ of Multiple Sclerosis: The Unspeakable Bits from a Life With MS By   Trevis Gleason   Jul 30, 2013   2   Comments When we first started writing the “ Unspeakable Bits ” blog, I resolved not to candy-coat the difficult parts of living with  multiple sclerosis . I’d always intended to open the conversation about end-of-life and MS. I decided to broach the subject now, in the wake of the recent passing of our fellow “MSketeer,” Annette Funicello . Social media sites erupted with kind words and remembrances of the actress. Soon, however, confusion began to set in as Disney’s press release attributed her death to “complications from multiple sclerosis.”  When a Canadian television  video of her last days  was broadcast as a remembrance, confusion became fear and concern. My greatest fear when the dark days have me thinking about MS is that it might get “that bad,” but I must admit that I didn’t really know what that means. What does “advanced MS” look like? 

Free download on Amazon by Cher'ley Grogg

I am SO excited to post fellow author Cher'ley Grogg here on my modest little blog. I will be reading The Secret in Grandma's Trunk today. So, get your own free   download today!!!! I’m so glad to have this opportunity to share a little about myself and my children’s novel “The Secret in Grandma’s Trunk”, which is free to download from Amazon for a limited time.   The inspiration for the book came from my grandsons. I have three grandsons and a granddaughter. My granddaughter loves to read, but the boys do not, so I decided to write a book they would love to read. I knew it’d have to have strong kids in it, strong physically and head strong too.  The characters would all have to be realistic with problems and scuffles among themselves, it would have to be fast paced and full of adventure.  Plus my grandsons like sports and girls so I needed to put that in there as well. I couldn’t leave my granddaughter without someone to relate to so I gave the brothers in the story a female c

Free download on Amazon by Cher'ley Grogg

I am SO excited to post fellow author Cher'ley Grogg here on my modest little blog. I will be reading The Secret in Grandma's Trunk today. So, get your own free   download today!!!! I’m so glad to have this opportunity to share a little about myself and my children’s novel “The Secret in Grandma’s Trunk”, which is free to download from Amazon for a limited time.   The inspiration for the book came from my grandsons. I have three grandsons and a granddaughter. My granddaughter loves to read, but the boys do not, so I decided to write a book they would love to read. I knew it’d have to have strong kids in it, strong physically and head strong too.  The characters would all have to be realistic with problems and scuffles among themselves, it would have to be fast paced and full of adventure.  Plus my grandsons like sports and girls so I needed to put that in there as well. I couldn’t leave my granddaughter without someone to relate to so I gave the brothers in the story a fem