MS Awareness Month 2023 IS HERE! I wrote a book. All you need to do is read it! The eBook version is available for only $1.99. UPDATE: My book is now also available in paperback . Living with Multiple Sclerosis provides an ongoing blank canvas, sometimes within a few scant hours. What worked at breakfast is history. Lunch is a new story and who knows how we feel by supper time? Don’t get too comfortable . Things are about to change. Lisa, Lady With the Cane Ms Awareness Multiple Sclerosis Memoir Chronic Illness Support
What do you do when heat exhaustion and the MonSter don’t mix? It's that time of year. You know what I mean. The sun is shining, bikinis are on sale, coolers are loaded, and summer invitations are distributed. Unfortunately, a majority of MS Warriors face the disappointing reality of being inside looking out. According to a May 2022 study by the National Library of Medicine, between 60% to 80% of patients with multiple sclerosis (MS) exhibit Uhthoff’s phenomenon with heat exposure. Uhthoff’s Phenomenon (also known as Uhthoff sign or Uhthoff syndrome) is described as a transient worsening of neurological symptoms related to a demyelinating disorder such as multiple sclerosis when the body becomes overheated in hot weather, exercise, fever, saunas, or hot tubs. I know. That’s a mouth full and likely not to resonate with, well, just about anyone. Severe intolerance to heat is one more reason MS Warriors are misunderstood. We're not whining. Our world is just so difficult to expla