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This is how I feel

Why do we pretend so much? Is it pride? Is it because it' easier to project a more "normal" existence than to bow to the demands of this ridiculous disease? 

Or do we live in a contestant cloud of denial? If I ignore it long enough it will go away?

For several weeks now I have been experiencing a weird, weird, weirder than weird symptom of spasticity (I must have invented that word, 'cause every time I type it, I am reminded to correct it. Oh, well...)or cramping or whatever in my right foot. Th toe right beside the big one keeps curling under until it has begun to control the entire right side of my body. Whatever that toe wants, it gets. 

There are times when it feels that I am actually walking on the wrong side of said appendage. I am beginning to believe that this is mostly due to the use of my AFO. It never happened until I insisted on wearing that pretty pink leg
every day, all day.  (Of course that is NOT the shoe I wear with it. If you want to talk shoes and AFO…
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AFO advice

A shout out to all AFO wearers:

Summer is in full swing. It's HOT outside. I really can't "play " outside without my pink leg and vaca is coming up. Which means: croquet tournies, fishing, corn hole, four-wheeler rides... heat exhaustion...

I currently wear a white compression knee sock under my AFO, but it gets rather warm and uncomfortable. But, I need to separate my skin from the unforgiving plastic. 

Are there any other easy alternatives out there?

Talk to me.

Stay cool, 

Relieving the MS Hug

Hope this work for you!

Have a great weekend,

There is no GPS for MS

I have always been a rather trusting person. I believe that when someone tells me they are going  to do something in particular, I believe them. Until they renege on their promise; and then  they no long exist to me.I don't mean I hate or thwart them. That person just no longer holds my interest.

The same with 21st century technology. In today's advanced world of communication, it is imperative that we place our  trust in helpful devices like microwaves, electric garage door openers, and this wonderful invention called GPS (Global Positioning System/ Satellite). What a marvelous thing to be able to type in an address and be taken there, step-by-step. We will never be lost again!


If you are frequent reader of Lady with the Cane, you know that my son is starting university this fall. A lover of all things academic, I KNOW I am more excited than he, so while he is off doing summer things Mom is reliving her glory days with visits to his soon-to-be new home and reacquainting h…

Post semi-panic

I rarely panic where my health is concerned. I mean, what is there left that I haven't experienced thus far living with the MonSter? 

[Screech...rhetorical question...don't really want to know the answer.]

But, I had a moment last week and bowed to my inner devil's advocate.

Thank goodness I have an excellent medical cheerleader in my camp. Ericka Blackwell may not be a fully credentialed neurologist, but  her compassion and interest is sincere and vastly more professional than many licensed neurologists I have met on this journey. So, she scheduled  an appointment  and sat patiently with me while we hashed out my current questions regarding my MS.

My biggest concern lately is the fact that my right (foot) toes (big toe and little one beside it) have been curling up painfully on a daily basis, further hampering the annoying foot drop that rules my world. Well, guess what? There is a muscle relaxant called Baclofin that is basically side-effect free that will help me with this.…