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Do something nice for yourself

No matter how long I live in the company of the MonSter, I never get used to it. I get tired of pushing through the day on legs that will not move and feet that cannot feel. 

After treating myself to a gentle yoga class this morning, I could barely move. I forced myself to ride the stationary bike to further stretch my frozen calf muscles and things loosened up a bit, but for the rest of the day I have felt half-baked. My toes continue to curl and my arms are just useless.

Tomorrow I get to bowl (yippee) and just wonder if I can even make it to the bowling alley. I don't figure anyone would miss me, but I refuse to give in to this beast. Even if it means falling flat on my face to the ridicule of an entire bowing alley. Just another day in the life...

On a lighter note, look what our MS Warriors in Belfast, Ireland, do for themselves.  Looks like a neat idea.

It isn't always easy to feel worthy of self-indulgence, but it is really important. I did something for myself yesterday. I…
Recent posts

Writing an Appeal

I am looking for advice. Some  of you know that my insurance denied any assistance with acquiring the Walk Aide L300; mostly on the basis of a lack of clinical evidence that that the device is not necessary to the diagnosis of MS. 

I am now filing an appeal and am looking for suggestions/advice/prior experience in the appeal process.Thus far, my rough draft is equal in volume to a short story. "Cause, y'know, I like to write.

If  there are words of wisdom out there (I know there are), please share with me. If you have attempted to leave comments here in the past and failed, that issue is fixed (Thank you, Rebecca), so I implore you to spread your words here

Thanks in advance.

Have a wonderful weekend,

NOW IN KINDLE FORMAT!!!!!!!!!!!!!!!!!!!!!!!!!

Is it possible to live disease free?

The following information is the original content of

...when I was diagnosed with MS 29 years ago, I was told there was no hope for me, and no cure.The experts told me there was nothing I could do to change the course of the disease, and they assured me I would end up in a wheelchair in time. Unfortunately, not much has changed from then to now. Today when people are diagnosed with MS they are usually put on very expensive drugs and still become disabled in time. Most often relapsing remitting MS turns to progressive MS. The MS drugs suppress our immune system and do not address the true cause. Canada has one of the highest rates of multiple sclerosis in the world, with an estimated 1 in every 385 Canadians living with the disease. MS and chronic disease in general is caused by a collection of infections – silent chronic infections. These infections differ from person to person, which is why it is so important to work with someone, be it a coach, an integrative doc…


Checking in with current Sertraline weaning...

A long, long time ago (fifteen to be precise), I took it upon myself to rid my system of the mood regulating pill prescribed by my neuro. I just felt it was too much on top of  my Beta Seron. All was well for about four days and then the walls came tumbling down.

Leaving my classroom at the end of the school day, I suddenly became extremely disoriented. My vision blurred, I felt flushed and my head was entertaining a "buzz" described by college friends in another lifetime. My entire body tingled and the sensation of being in a pulsating cave. I was terrified.

Today, in the middle of a doctor's appointment (How many UTI's can one person suffer? If I drink any more water I will drown!), a shadow of that sensation over came me. I couldn't wait to get home and down a Zoloft (official name of the generic Sertraline). 

Lesson learned. Three days are too long for an experiment of this magnitude. Plan B: I'll take Zoloft on …


Day three of my Sertaline strike and so far, so good. Last night I took a second dose of CBD just in case. I take it in the morning with all my other "goodies" (Ampyra, Gilenya, vitamin D, magnesium, and a multivitamin that turns my pee a vibrant, neon yellow) but it is recommended to double the dose after a while. I felt it might be a good idea.

It is kinda pricey for a supplement, but very doable if it is going to work. Even after three good days, the jury will remain out until the end of the week. Normally by this time with no little blue pill I am a puddle of mush.

I'll see you again tomorrow for another update.