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Post semi-panic

I rarely panic where my health is concerned. I mean, what is there left that I haven't experienced thus far living with the MonSter? 

[Screech...rhetorical question...don't really want to know the answer.]

But, I had a moment last week and bowed to my inner devil's advocate.

Thank goodness I have an excellent medical cheerleader in my camp. Ericka Blackwell may not be a fully credentialed neurologist, but  her compassion and interest is sincere and vastly more professional than many licensed neurologists I have met on this journey. So, she scheduled  an appointment  and sat patiently with me while we hashed out my current questions regarding my MS.

My biggest concern lately is the fact that my right (foot) toes (big toe and little one beside it) have been curling up painfully on a daily basis, further hampering the annoying foot drop that rules my world. Well, guess what? There is a muscle relaxant called Baclofin that is basically side-effect free that will help me with this.…
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World MS Day

World MS Day 2019 ... City Hall Belfast turned Orange on World MS Day ... Here's to all the Warriors living with Multiple Sclerosis in the world ... Stay Strong Warriors


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Inner Peace

It has been one rough school year! But, it is over...for now.

Graduation has come and gone; college application is complete; summer job secured; we will  sign up for his first semester classes on Friday...Now, we just wait.

Not only am I in need of inner peace, but my son is struggling to find his as well. Sickness, appointments, confusion, anticipation...
I am so glad I survived those days  long ago and can concentrate on enjoying the spoils I have received. 

He will not be attending his first choice university, but that is okay. I really believe good will come of this if he just gives it a chance. One year...that is all I ask. It's virtually a free ride and time to re-evaluate his future goals. 

As anyone knows who has lived with a teenager, it is difficult to live with someone who is certain that he knows it ALL. I remember being there myself and hating myself for being such a pain. But it is a necessary stage in life. I fervently apologize to my parents for being such a pseudo-geni…
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Following the Cheerio Trail

Crunch!

Didn't I just sweep this floor? What on earth am I stepping on?

When my son was a toddler, I could often find him by tracking the trail of circular cereal pieces the dog hadn't got to first.

Years later, we no longer have a dog but the trail still exists. In three short months my Cheerio eater will be off to life in a dorm room. I hope his room mate is understanding or maybe sympathetic to this situation. Even more, it is my wish that said son will begin picking up after himself. An equally slavish roomie might be therapeutic but an obsessive cleaner could further enable this behavior. Six of one/ half a dozen of the other. Whatever...it will no longer be my problem.



For a brief second I entertained the idea of thoroughly remodeling my boy's rooms once he vacates it for a higher education, but the closer that gets the more I mourn his absence. I know I am not alone and it will come as no surprise that my brain is flooded with "just yesterday" memories of my p…
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Happy May!

Happy May 2019

I have kept a journal all my life, probably since I could grasp a writing utensil. I have chronicled favorites, disappointments, personal goals and resolutions, vacations, major life events, books read, movies watched...you name it. When I discovered I was pregnant eighteen years ago, I started a journal for my child. I wrote to her/him every day with important medical facts connected to pregnancy, doctor visits, and news worthy events of the day. My first ultrasound photo is tucked within the pages of an early  journal. A formula bottle label and the hospital baby bracelet is scotch  taped to a page. 

As the years have progressed my child's collections of Mommy journals have grown to an entire shelf above my desk. Lists of accomplishments (his and mine) have replaced new born and toddler announcements. I have tried to highlight everything that he may forget or not remember as a landmark or important moment.

Unfortunately the older he gets, the less I tend to write and…
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