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New Year Resolutions I WILL Keep

Happy New Year, MonSter. Here we go again. Welcome to 2020. I don't know what you have in store for me this decade, but this is my agenda:

1. Publish two new books; one of which YOU, MonSter, are the main character. Excited? Well, don't be. You're not the hero.

2. Continue exercising every day, even if it's just a few minutes of simple stretches. 

3. Stress less. Pray More. How? Refer to items one and two.


2019 brought to me...

*an incredibly stressful year for my high school senior, resulting in his first semester of university...hoping for a better stretch of academia for him. 

*new and frightening MS pains, symptoms, and treatment struggles

*a new and improved bowling average...90  currently with a notable 100 a few weeks ago

*a successful NaNoWriMo

I know that can't be everything, but my dear friend MS has really attacked my cognitive abilities this year. 

Oh, well...

Happy New Year,
Lisa, Lady with the Cane





https://www.amazon.com/Have-Whats-Your-Super-Power/dp/1882658442/…
Recent posts

Foot Drop treatments

Through an adaptive, learning algorithm, the L300 Go detects gait events, providing stimulation precisely when needed making it easier for users to clear their foot at different walking speeds, on stairs, ramps, and while navigating uneven terrain.

Doesn't this sound wonderful?



As you know if you read this blog regularly, a second request for further review of the L300 GO was denied. My immediate reaction was disappointment, followed by anger, ending in resolve to create the BEST letter of appeal possible. In my mind there has to be a way to reach out to the powers that be and  convince them that this treatment is relevant.

Or, is it?

After a week of sharing my news and collecting suggestions, I decided to come to you for more information. Is there anyone out there who has worked with this electric muscle stimulation and found it worth while? Evidently thee is not enough clinical evidence to support the success of such therapy as treatment for drop foot in multiple sclerosis. In fact,…

L300 GO appeal update

L300 GO second appeal update: DENIED

Okay, man, them's fightin' words. I have 30 days to file a third appeal, which I will do.

The justification for this answer? Once again, a committee, individual, or robotic judge (Who knows?) decided that After review of the information submitted and your summary plan description, it was determined this service is not medically necessary, so it is not covered by  your plan. 
The reply further states this device has not been shown to be helpful for foot drop related to multiple sclerosis.


Well, UMR, PEIA, you evidently do not know how research of said device(s) works.  Get out of the laboratory and put on your human observation goggles. Wall what better way to determine effectiveness than to put the real life aspect into your research. If a muscle is not being challenged, that muscle will eventually die. Electric stimulation provides the challenge that I can no longer provide on my own power. Without human interaction how can the effectiveness o…

Hodge Podge of MS info

...Warriors are their own physician. So,Warrior, heal thyself!



Ten days since I mailed in my request appeal for coverage in acquiring L300 GO. Nine days since starting my latest journey with CBD oil. Since then I have received confirmation that my appeal is being reviewed AND I have upped my daily oil dosage from 3 drops to 5. The biggest change I've observed is that I'm in a much better mood, so maybe Zoloft will be the first med I can eliminate from my personal pharmacy. Will keep ya posted.

Thinking positive about both ventures, but content with the outcome no matter what. I am NOT in control of my destiny and the man upstairs knows my needs, so it rests in His hands; but, I've got a brain and as long as that brain is functioning I'll continue to search for relief. And that's okay. I am grateful for the opportunity to continue fighting the MonSter by whatever means I am given.

In fact I'm already checking out my next chapter in fighting this 
bugger. 

With my phy…

CBD and MS

We warriors are a resilient breed. After speaking extensively with a CBD enthusiast over the weekend, i finally bit the bullet and bought the "good" stuff...all in the name of research. Things have changed a bit since my first CBD experience, including the flavor. This particular product comes in natural (an earthy flavor), peppermint (self-explanatory), and cinnamon (Yum!).Because particular brand (Hempworx) has ONLY two ingredients : CDB and hemp seed oil.  

I decided to document my experience here, so if any of you are interested we can discuss our personal journeys. As you all know, MS is an expensive condition that requires careful thought to additional treatments and related expenditures, most of which are not recognized by insurance companies and/or medical professionals; so, every experience is a financial gamble.

I started my new "treatment" on Saturday, October 26, 2019. The instructions direct you to take two-three drops under the tongue twice a day for th…