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Showing posts from March, 2018

Give me a hug!

Am I plagiarizing again? You bet I am. This is good stuff. The MS hug is an enigma that was never explained nor mentioned to me. I discovered this ailment not long after my diagnosis, but blamed the sensation on child birth. My son was only six months old when I was diagnosed. I just figured this physicalsensation was a result of what my body had endured during thatprocess. 
As the "hug" continued for several years, I finally found mention of this MS symptom. So I researched it and, bang!, came to the logical conclusion that my disease was offering a weird kind of affection. (Yes, I'm a bit twisted when it comes to my MS. It's called survival.)
I have found that stretching and yoga  help relieve the vice-like sensation of "the hug" for me, but there is no known "cure". When the "hug" gets to be too much, fight back. Hug a friend. Turn this lemon into lemonade.
Don't forget to spread your hugs and kisses to other MS Warriors with the gift…

Give me a hug!

Am I plagiarizing again? You bet I am. This is good stuff. The MS hug is an enigma that was never explained nor mentioned to me. I discovered this ailment not long after my diagnosis, but blamed the sensation on child birth. My son was only six months old when I was diagnosed. I just figured this physicalsensation was a result of what my body had endured during thatprocess. 
As the "hug" continued for several years, I finally found mention of this MS symptom. So I researched it and, bang!, came to the logical conclusion that my disease was offering a weird kind of affection. (Yes, I'm a bit twisted when it comes to my MS. It's called survival.)
I have found that stretching and yoga  help relieve the vice-like sensation of "the hug" for me, but there is no known "cure". When the "hug" gets to be too much, fight back. Hug a friend. Turn this lemon into lemonade.
Don't forget to spread your hugs and kisses to other MS Warriors with the gift…

Sometimes You Can Blame MS

Just wanted to share this article. There is so much more than these two points, but  felt the need to highlight these thoughts in particular.
Sometimes You Can Blame MS
I certainly don’t blame all of my problems on Multiple Sclerosis, but, well, it did end my career and my marriage. It’s also responsible for me being in a lot of pain, and a host of other issues. There are some rather large and legitimate issues in my life that I can blame on MS. I’ve been positive, I’ve tried the diets, the different medications, believe me, I’ve done everything possible in the nearly two decades since I was diagnosed. 


It’s not because of our attitudesThat is the problem when people make comments about not blaming MS or not being positive enoughor any of the other attempts at being motivational. For many people who have had a rough go of it, motivational type messages can feel like a real slap in the face. It’s not because of our attitudes, it’s because we’ve been through hell. 
https://multiplesclerosis…

Sometimes You Can Blame MS

Just wanted to share this article. There is so much more than these two points, but  felt the need to highlight these thoughts in particular.
Sometimes You Can Blame MS
I certainly don’t blame all of my problems on Multiple Sclerosis, but, well, it did end my career and my marriage. It’s also responsible for me being in a lot of pain, and a host of other issues. There are some rather large and legitimate issues in my life that I can blame on MS. I’ve been positive, I’ve tried the diets, the different medications, believe me, I’ve done everything possible in the nearly two decades since I was diagnosed. 


It’s not because of our attitudes That is the problem when people make comments about not blaming MS or not being positive enoughor any of the other attempts at being motivational. For many people who have had a rough go of it, motivational type messages can feel like a real slap in the face. It’s not because of our attitudes, it’s because we’ve been through hell. 
https://multiplescleros…

Aubagio Followup

WOW!

Last evening I attended an area meeting to learn more about Aubagio, one of the three oral MS medications on the market. General MS physician Mark Hospodar provided the informational portion of the session, complete with a slide presentation full of facts about multiple sclerosis. It was very basic and mostly repetitive for those pro-active MS sponges. Not mind-blowing stuff, but pretty heavy on the importance of medicating upon diagnosis.
Enough to convince me to take a closer look at my own choice to remain MS drug free.

It was an intimate group of approximately a dozen women plus the doctor. Very relaxed, informal, and free of judgement. We were all there for the same reason with the same goal in mind: to discover the "wonder" drug, or at least something closer to a promised remedy. (In addition to the fantastic Italian cuisine at Muriale's Restaurant. Yum!:)

We heard from Aubagio veteran, Renee, who told her journey with her initial diagnosis s well as her life with …