Skip to main content

Ann Romney and I are really NOT in this together.





Today is the day! Your last badge assignment was to read a book about multiple sclerosis. I hope you found an interesting one. They are not all nonfiction statistics, y'know.

I chose Ann Romney's memoir in this together: my story. I really enjoy true life stories and I enjoyed reading Mrs. Romney's journey with MS. Since she was diagnosed prior to me, many of our recollections differ. And, unfortunately, much of our treatment(s) are vastly unalike.

Whoever coined the phrase "money can't buy happiness" didn't have an incurable disease. While folks in Ann Romney's world find solace in equestrian therapy, this country bumpkin wants her insurance to assist in paying for Ampyra so that I  can walk. Ann Romney has one of the leading neurologists in the world on her side, and I am happy for her; but I cannot relate to the privileges she enjoys.

It is not Ann Romney's fault that she is wealthy and I am not. We are very, very different in every aspect other than the MonSter.

I feel that Mrs. Romney sincerely cares for her fellow MSers and I am much impressed with her affiliation to her own neurological center. I enjoy reading about other folks' relationship to their disease, even when I have no or little point of reference the their lifestyle.

It just all comes down to the fact that our bodies have besieged us and we must find our best form of defense. I am not going to be riding horses in my treatment. I cannot afford it nor am I even interested in attempting to balance my wobbly self atop such a mountain of muscle. I am glad that Ann Romney can afford this and that she does so with such passion.



So, I will earn my book badge by recommending this story with a guarded heart. Even though I find Romney's story intriguing and even though I am secretly in love with her husband and even though I will never find myself in the position to share the air she breathes (literally and figuratively), I suggest in this together to be a part of your MS library.

So, here they are: Your MS badges to date. 



What's next? Summer always reminds me of fulfilling peersonal objectives...that bucket list kinda thing.

Actually I prefer to refer to it as a basket list. It sounds so much more feminine...and, well...summery.

So, I challenge you to complete an item on your basket list. Write that novel. Clean out that closet. Take that knitting class. Run that mile.

Take as long as you need. Just do not let it get away from you.

Commit to something and see it through.

Have a great weekend.
Lisa

Post a Comment

Popular posts from this blog

A Sea of Orange Hope

With a forecast for rain and cool temperatures, many felt the 2018 Walk for MS might be a sloppy mess; but when I arrives in Morgantown, West Virginia, I found an optimistic, celebratory atmosphere that no storm could dampen. Clouds dispersed and skies cleared, knowing that the heavens  could not compete with the storm happening on the ground at the  Waterfront.







The true champions had arrived and their name was Warrior.



Tents were erected, tables arranged, team shirt distributed, books stacked, (I got to share I Have MS. What's Your super Power? !!!!)






acknowledgements made, participants in place, and the walk began,






















with Team Tiffany in the lead. My new MS friend, Tiffany Albright, is an inspiration. she single-handedly recruited an amazing team of walkers that outnumbered any other congregation in attendance. Her numbers were amazing in monetary contributions and the enthusiasm of her teammates was more than inspiring. 

Event though I did not personally join the walkers, my day was fu…

MS and Exercise

I don't know about you, but sometimes (most of the time) the motivation to exercise is just not there. And that is just plain crazy.

I am more than aware of the positive effects of daily exercise. I always feels better, both physically and mentally, after taking time to stretch, bend, and force my body to meet the challenge of movement. My biggest issue is the accountability. Exercising alone means no one can attest to your commitment. Unfortunately group gym, spa, or class situations are not financially nor logically an option for many of us.

And sometimes, like this morning, it is even an effort to fire up the DVD player in order to access one of my many yoga videos. Even though that cute little blond instructor coos encouraging words my way, her interest in me is purely superficial. We know nothing about one another. 

According to healthcare.com the following chart shows the seven best exercises for living with MS. They are easy, doable and require no equipment or additional cost.…

Aubagio Followup

WOW!

Last evening I attended an area meeting to learn more about Aubagio, one of the three oral MS medications on the market. General MS physician Mark Hospodar provided the informational portion of the session, complete with a slide presentation full of facts about multiple sclerosis. It was very basic and mostly repetitive for those pro-active MS sponges. Not mind-blowing stuff, but pretty heavy on the importance of medicating upon diagnosis.
Enough to convince me to take a closer look at my own choice to remain MS drug free.

It was an intimate group of approximately a dozen women plus the doctor. Very relaxed, informal, and free of judgement. We were all there for the same reason with the same goal in mind: to discover the "wonder" drug, or at least something closer to a promised remedy. (In addition to the fantastic Italian cuisine at Muriale's Restaurant. Yum!:)

We heard from Aubagio veteran, Renee, who told her journey with her initial diagnosis s well as her life with …