Skip to main content

I got AMPYRA for my birthday!

Today is my birthday.
Today is  Friday.
It's Day 4 of Multiple Sclerosis Awareness Month.

On my agenda:
I'm joining my mother this morning for a mani-pedi.

Birthday celebration will take place later with Muriale's (if you have never dined at Muriale's in Fairmont, WV, you need to put that on your bucket list https://www.facebook.com/Muriales-Italian-Kitchen-101688838513/?rc...) hoagies and carrot cake.

I am beginning my new drug therapy today.


Yesterday I received my free trial of Ampyra in the mail, just in time for my birthday. So, I'm giving myself a present (I hope). In 33 minutes (because I need an exact time schedule for consuming the pill), I will take the first of two daily doses of Ampyra. I have already completed the first of three surveys to track my progress and ACORDA Therapeutics has promised me a backpack for my time. So far it's a win-win situation.

According to the safety information included in my Ampyra packet, the following cautions were included:
"The most common adverse events for AMPYRA in MS patients were urinary tract infection (oh, boy), trouble sleeping (Since, I cannot seem to stay awake lately, this is okay with me.) , dizziness , headache, nausea, weakness, back pain, problems with balance, multiple sclerosis relapse, burning, tingling, or itching of your skin, irritation in your nose and throat, constipation, indigestion, and pain in your throat."

Most of these symptoms I already suffer on a daily basis, so I am not certain how I will know if and when any of them are a result of the drug.

The biggest side -effect is seizure activity. Even if you have never suffered a seizure of any kind, this could happen. This is not sitting well on my mind, but I am putting this in God's hands and will give it a try.

It's almost drug time, so this is short today.

Just do not forget that March is MS Awareness Month and that I am donating a portion of my book sale proceeds to MS until the end of the month.


Abby, $15.00
I Have MS. What' Your super Power? $12.00
Bundle them and save! Both books $25.00

Lisa
E-mail me to arrange shipping and/or delivery (cost is on me).
LisaAnnetteMcCombs@yahoo.com
Post a Comment

Popular posts from this blog

You are invited to Letters to the MonSter

https://www.youtube.com/watch?v=serV18MirGg

Well, the sun is shining at last and it appears that spring is sincerely here and hinting at summer weather.    That means I need a summer project; hopefully one that I can complete. With two young adult books   in various levels of completion, you will surely tells me how ridiculous I am to start yet another writing project. but, inspiration has no rules, right?
           The entire month of March MS Awareness Month led to so many
awesomeavenues of expressions, fueling my need to share and learn with 
fellow MS Warriors. So, let's hare. Let's learn. In Letters to the MonSter, 
my goal is to allow fellow Warriors to vent, scream, rant, and exorcise the  MonSter out of our lives. Let's unite in this project to erase multiple sclerosis from our lives. As Leslie Hillburn stated in the preface to my last tome to this disease, "...the ONLY place you will get any support and understanding in dealing with me (MS) is with Other People wi…

Dental care and MS

Having an autoimmune disease makes every aspect of living a healthy life magnified in comparison to that of a healthy individual. Multiple sclerosis magnifies the effects of every little nuance life tosses our way. The common cold is n longer a little sniffle fest. Stress headaches evolve quickly into migraines. Solving the soduko in the morning newspaper turns into a major college exam.

In my case, I have experienced ridiculous dental issues. At the age of thirty-two I elected to pursue the dream of having perfect teeth. Getting braces sounded a bit odd to my friends, but I could now afford the financial burden and I believed I was mature enough to truly be responsible for the process. 

Call me weird; but I totally enjoyed the process (I don't care). My students even got a kick out of it, especially when they taught me how to "fling" my rubber bands with my tongue. (Such a cool weapon.)

Upon braces removal day, I swore to be religious about wearing the retainers. And I did…

Alien feet?

Okay, so after my initial reunion with social media, I naively imagined today to be more productive. But, no...

For someone who doesn't spend much time perusing sites like Pinterest, my interest has suddenly piqued to the point that addiction be a possibility.

Hoping to find someone of like mind, I instead downloaded a slipper pattern I might knit for Christmas presents (oops, there goes the surprise). It looks fairly simple. Let me know if you give it a try.
https://www.pinterest.com/pin/538250592959842993/

And, then, I found this really neat yoga flow outlined for me.
Since yoga seems to be the go-to exercise for us Warriors, I decided to share. That way we do not have to invent our own personalized routine. You're welcome.




Then, I discovered an entire page of memes that put MS in perspective to the causal reader-reluctant  on-looker. And because  this figure is essentially in the child pose... well, you get the picture.

Of course, any information on foot drop always attracts my at…