Skip to main content

Tecfidera - Days 8 and 9

Happy New Year!

This is my second day on full dose 240mg twice a day. I was really nervous about doubling my dosage, but I actually made a very smooth transition yesterday and felt absolutely no side effects or weirdness. So, I guess I am officially a Teccie (Teckie? Techie?). I had really hoped to write this installment on my new desk top computer, but as my husband and I were hooking everything up, I realized why I gave up my last desk top. For some reason our desk tops require a USB adapter in order to access the internet and I gave mine to my son when he received his birthday present this year. So, I suppose I need to make a visit to our local Radio Shack in order to use my new possession. The biggest reason I purchased was the deal I got. Just hope it doesn't back fire as so many deals are prone. I will still need to find a laptop after the school year is over, but if I am going to devote hours to writing, I need to move my computer time from the couch with my laptop to another room with my desk top. Eliminating all distractions is one of my new  year's resolutions.

(Whoa! News to me. I didn't realize that I had made resolutions until those words appeared on the screen: Isn't it interesting what happens when the fingers take over and there are no distractions?:)

Well, today is the first day of 2015. When I was my son's age, I never would have imagined being here in the year 2015. Wow! When I was his age, the year was 1973. Disco wasn't even hot yet! And now I am entertaining retirement. The years, they certainly do race along. In that case, here is another resolution: I refuse to waste a second of this life. Every day his a gift and I plan to open every one that I have left with appreciation and great joy. When I think of it this way, I know that I am ready for the next chapter in my life. And I embrace this new opportunity with excitement.

Want to know more about Tecfidera? Well, the flushing seems to have dissipated, for which I am extremely grateful, and after reading more about it all, I realize that I have also experienced a little nausea and diarrhea, but it has been so minute that I will not dwell on that. My guide book says "stomach problems tend to happen earlier in treatment and usually decreased over time." that's encouraging. And it's good to know that there is an ActiveNurse available at 1-800-456-2255.

That's really all that I have to say today. Along with being the day that my mother prepares cabbage rolls for dinner, this is a huge football day. At 4:00 FSU and Oregon play and later the Crimson Tide takes on Ohio State. Normally an Oregon Ducks fan I plan to cheer on FSU and, of course, the Tide. It would be very exciting to have two West Virginians coaching the teams playing in the National Championship. So, Let's go Florida and Roll, Tide, Roll!








Post a Comment

Popular posts from this blog

A Sea of Orange Hope

With a forecast for rain and cool temperatures, many felt the 2018 Walk for MS might be a sloppy mess; but when I arrives in Morgantown, West Virginia, I found an optimistic, celebratory atmosphere that no storm could dampen. Clouds dispersed and skies cleared, knowing that the heavens  could not compete with the storm happening on the ground at the  Waterfront.







The true champions had arrived and their name was Warrior.



Tents were erected, tables arranged, team shirt distributed, books stacked, (I got to share I Have MS. What's Your super Power? !!!!)






acknowledgements made, participants in place, and the walk began,






















with Team Tiffany in the lead. My new MS friend, Tiffany Albright, is an inspiration. she single-handedly recruited an amazing team of walkers that outnumbered any other congregation in attendance. Her numbers were amazing in monetary contributions and the enthusiasm of her teammates was more than inspiring. 

Event though I did not personally join the walkers, my day was fu…

MS and Exercise

I don't know about you, but sometimes (most of the time) the motivation to exercise is just not there. And that is just plain crazy.

I am more than aware of the positive effects of daily exercise. I always feels better, both physically and mentally, after taking time to stretch, bend, and force my body to meet the challenge of movement. My biggest issue is the accountability. Exercising alone means no one can attest to your commitment. Unfortunately group gym, spa, or class situations are not financially nor logically an option for many of us.

And sometimes, like this morning, it is even an effort to fire up the DVD player in order to access one of my many yoga videos. Even though that cute little blond instructor coos encouraging words my way, her interest in me is purely superficial. We know nothing about one another. 

According to healthcare.com the following chart shows the seven best exercises for living with MS. They are easy, doable and require no equipment or additional cost.…

Aubagio Followup

WOW!

Last evening I attended an area meeting to learn more about Aubagio, one of the three oral MS medications on the market. General MS physician Mark Hospodar provided the informational portion of the session, complete with a slide presentation full of facts about multiple sclerosis. It was very basic and mostly repetitive for those pro-active MS sponges. Not mind-blowing stuff, but pretty heavy on the importance of medicating upon diagnosis.
Enough to convince me to take a closer look at my own choice to remain MS drug free.

It was an intimate group of approximately a dozen women plus the doctor. Very relaxed, informal, and free of judgement. We were all there for the same reason with the same goal in mind: to discover the "wonder" drug, or at least something closer to a promised remedy. (In addition to the fantastic Italian cuisine at Muriale's Restaurant. Yum!:)

We heard from Aubagio veteran, Renee, who told her journey with her initial diagnosis s well as her life with …