Skip to main content

How do you cope?

     Yesterday I posted about comfortable footwear for the MS drop foot and I must apologize. After reflecting on what I wrote, I am embarrassed by my flippant attitude and assumption that everyone can afford such tag brands as Nike or Teva. The brand name is not important in comfort issues because that is exactly what it is all about...comfort. Find something that works for you. These are just my finds and I am happy to share with you. I am hard on shoes so quality is essential to me since  I wear them until there is nothing left to put in the hand-me-down box.
     Which brings me to a wonderful idea! For years I have "traded" seasonal clothing with a good friend of mine. We play the "hand-me-down" game at the beginning of each season so that our wardrobes are refreshed and it's a cheap way to go shopping. It's fun, too, when old pieces return to be enjoyed again. This recycling game continues until the clothing just "wears out" and then we find someone in need of our discards.        This little fashion game is a way to cope with the female need for new clothes, but how do we cope with the ravages of MS?
        Here is my list:
1. Yoga
2. a good book
3. 800mg Ibuprofen for temporary relief of inflammation (only when needed)
4. daily dose of Zoloft for the emotional effects of MS
5. an afternoon nap
6. Drink lots of water.
7. Prioritize responsibilities.
8. Don't feel guilty for not being able to "do it all".
9. Find a welcoming church or place to meditate in whatever fashion you choose. A little bit of "worship" goes a long way. (I love my church family, but I am most at peace at my camp in Bemis. It's my "happy" place.)
10. Do not think of yourself as a "victim" (Thank you, Nick Irons for correcting me on that issue.), but embrace the fact that you are the face of MS. It is what it is.

What are some ways you cope? Let's share.

Don't forget to check out my young adult book Abby on www.Amazon.com or www.FrisenPress.com. Even though this is cataloged as a young adult read, the information is all-age appropriate.

Post a Comment

Popular posts from this blog

You are invited to Letters to the MonSter

https://www.youtube.com/watch?v=serV18MirGg

Well, the sun is shining at last and it appears that spring is sincerely here and hinting at summer weather.    That means I need a summer project; hopefully one that I can complete. With two young adult books   in various levels of completion, you will surely tells me how ridiculous I am to start yet another writing project. but, inspiration has no rules, right?
           The entire month of March MS Awareness Month led to so many
awesomeavenues of expressions, fueling my need to share and learn with 
fellow MS Warriors. So, let's hare. Let's learn. In Letters to the MonSter, 
my goal is to allow fellow Warriors to vent, scream, rant, and exorcise the  MonSter out of our lives. Let's unite in this project to erase multiple sclerosis from our lives. As Leslie Hillburn stated in the preface to my last tome to this disease, "...the ONLY place you will get any support and understanding in dealing with me (MS) is with Other People wi…

Alien feet?

Okay, so after my initial reunion with social media, I naively imagined today to be more productive. But, no...

For someone who doesn't spend much time perusing sites like Pinterest, my interest has suddenly piqued to the point that addiction be a possibility.

Hoping to find someone of like mind, I instead downloaded a slipper pattern I might knit for Christmas presents (oops, there goes the surprise). It looks fairly simple. Let me know if you give it a try.
https://www.pinterest.com/pin/538250592959842993/

And, then, I found this really neat yoga flow outlined for me.
Since yoga seems to be the go-to exercise for us Warriors, I decided to share. That way we do not have to invent our own personalized routine. You're welcome.




Then, I discovered an entire page of memes that put MS in perspective to the causal reader-reluctant  on-looker. And because  this figure is essentially in the child pose... well, you get the picture.

Of course, any information on foot drop always attracts my at…

MS and children

FDA Approves First Treatment for Pediatric MS On May 11, 2018, Novartis announced that Gilenya® (fingolimod) was approved by the United States Food and Drug Administration (FDA) for the treatment of children and adolescents, ages 10 through 17, with relapsing multiple sclerosis (MS). This is the first disease-modifying therapy (DMT) to be approved for this form of the disease in this age group. Known as “pediatric MS,” nearly all of those diagnosed have the relapsing form of the disease. Children also experience approximately two-to-three times as many relapses as an individual with adult-onset MS. A clinical trial comparing Gilenya to Avonex® (interferon beta-1a) in children and adolescents found that those treated with Gilenya saw an 82-percent reduction in their annualized relapse rate over a period of up to two years. Please see MSAA's online news article, "FDA Approves Gilenya® for Pediatric MS,"for more information. If links are disabled in this email, please copy a…