Skip to main content

It's just not fair...

I am and never have been attracted to the use of narcotics for amusement, but I could very easily become a Prednisone junkie. Steroids are the golden moment for MS victims; and on Sunday I was given a high dosage of said drug to jump-start my flu recovery. An hour later the heavens opened up and life was good again. My feet fell in perfect step; my hands actually grasped items they reached for; my annoying head flutter ceased. For two days I remembered what it was like to be near normal again.
...and then I woke up this morning with an uneven walking gait, a numb left hand, and a bobble head reflected in the mirror.

I actually felt like an addict as I reached for my bottle of steroids for round two. How long would it take to regain that euphoria of Sunday afternoon? How long will that settled state of mind and body last this time? I get to consume these lovely little tablets, twice a day for five days; supposedly to help combat the flu. But I know, and everyone out there with a neurological condition as well, that I  could contend with a little ol' bout of the flu if that's what it takes to be able to walk again.

Steroids rule....why can't the medical profession find a safe way to utilize this drug to help MS folks feel normal? This is the 21st century....surely, there must be a way to make steroid use safe.

I love the way I feel with this drug pumping away in my system; but I also know in five days my happiness will crash when I I can't life my right leg high enough off the floor to not trip on that infintessimal speck of dust that tripped my progress. OH, well....At least I have today, stuffy nose and all.

...but I can walk...

Comments

Popular posts from this blog

Alien feet?

Okay, so after my initial reunion with social media, I naively imagined today to be more productive. But, no...

For someone who doesn't spend much time perusing sites like Pinterest, my interest has suddenly piqued to the point that addiction be a possibility.

Hoping to find someone of like mind, I instead downloaded a slipper pattern I might knit for Christmas presents (oops, there goes the surprise). It looks fairly simple. Let me know if you give it a try.
https://www.pinterest.com/pin/538250592959842993/

And, then, I found this really neat yoga flow outlined for me.
Since yoga seems to be the go-to exercise for us Warriors, I decided to share. That way we do not have to invent our own personalized routine. You're welcome.




Then, I discovered an entire page of memes that put MS in perspective to the causal reader-reluctant  on-looker. And because  this figure is essentially in the child pose... well, you get the picture.

Of course, any information on foot drop always attracts my at…

You are invited to Letters to the MonSter

https://www.youtube.com/watch?v=serV18MirGg

Well, the sun is shining at last and it appears that spring is sincerely here and hinting at summer weather.    That means I need a summer project; hopefully one that I can complete. With two young adult books   in various levels of completion, you will surely tells me how ridiculous I am to start yet another writing project. but, inspiration has no rules, right?
           The entire month of March MS Awareness Month led to so many
awesomeavenues of expressions, fueling my need to share and learn with 
fellow MS Warriors. So, let's hare. Let's learn. In Letters to the MonSter, 
my goal is to allow fellow Warriors to vent, scream, rant, and exorcise the  MonSter out of our lives. Let's unite in this project to erase multiple sclerosis from our lives. As Leslie Hillburn stated in the preface to my last tome to this disease, "...the ONLY place you will get any support and understanding in dealing with me (MS) is with Other People wi…

MS and children

FDA Approves First Treatment for Pediatric MS On May 11, 2018, Novartis announced that Gilenya® (fingolimod) was approved by the United States Food and Drug Administration (FDA) for the treatment of children and adolescents, ages 10 through 17, with relapsing multiple sclerosis (MS). This is the first disease-modifying therapy (DMT) to be approved for this form of the disease in this age group. Known as “pediatric MS,” nearly all of those diagnosed have the relapsing form of the disease. Children also experience approximately two-to-three times as many relapses as an individual with adult-onset MS. A clinical trial comparing Gilenya to Avonex® (interferon beta-1a) in children and adolescents found that those treated with Gilenya saw an 82-percent reduction in their annualized relapse rate over a period of up to two years. Please see MSAA's online news article, "FDA Approves Gilenya® for Pediatric MS,"for more information. If links are disabled in this email, please copy a…