Lisa A. McCombs: Award Winning Author, MS Warrior,Reviewer of Books,Public Speaker
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Raspberry Beret in final, final revision!
On the first day of my summer
vacation I slept until noon.
the first day of summer vacation I forgot that we didn’t have school and had to
hurry to get dressed.
My summer vacation started
with a fantastic pool party and bonfire…
swam and camped all summer.
Summer vacation was the very
(that’s “cheese” in French. I just like the way it sounds.), the first week of
my summer vacation literally sucked. That is until the new family moved into our
old apartment across from Pap’s diner.
Well, the sun is shining at last and it appears that spring is sincerely here and hinting at summer weather. That means I need a summer project; hopefully one that I can complete. With two young adult books in various levels of completion, you will surely tells me how ridiculous I am to start yet another writing project. but, inspiration has no rules, right? The entire month of March MS Awareness Month led to so many awesomeavenues of expressions, fueling my need to share and learn with fellow MS Warriors. So, let's hare. Let's learn. In Letters to the MonSter, my goal is to allow fellow Warriors to vent, scream, rant, and exorcise the MonSter out of our lives. Let's unite in this project to erase multiple sclerosis from our lives. As Leslie Hillburn stated in the preface to my last tome to this disease, "...the ONLY place you will get any support and understanding in dealing with me (MS) is with Other People wi…
Okay, so after my initial reunion with social media, I naively imagined today to be more productive. But, no...
For someone who doesn't spend much time perusing sites like Pinterest, my interest has suddenly piqued to the point that addiction be a possibility.
Hoping to find someone of like mind, I instead downloaded a slipper pattern I might knit for Christmas presents (oops, there goes the surprise). It looks fairly simple. Let me know if you give it a try. https://www.pinterest.com/pin/538250592959842993/
And, then, I found this really neat yoga flow outlined for me. Since yoga seems to be the go-to exercise for us Warriors, I decided to share. That way we do not have to invent our own personalized routine. You're welcome.
Then, I discovered an entire page of memes that put MS in perspective to the causal reader-reluctant on-looker. And because this figure is essentially in the child pose... well, you get the picture.
Of course, any information on foot drop always attracts my at…
FDA Approves First Treatment for Pediatric MS
On May 11, 2018, Novartis announced that Gilenya® (fingolimod) was approved by the United States Food and Drug Administration (FDA) for the treatment of children and adolescents, ages 10 through 17, with relapsing multiple sclerosis (MS). This is the first disease-modifying therapy (DMT) to be approved for this form of the disease in this age group.
Known as “pediatric MS,” nearly all of those diagnosed have the relapsing form of the disease. Children also experience approximately two-to-three times as many relapses as an individual with adult-onset MS. A clinical trial comparing Gilenya to Avonex® (interferon beta-1a) in children and adolescents found that those treated with Gilenya saw an 82-percent reduction in their annualized relapse rate over a period of up to two years. Please see MSAA's online news article, "FDA Approves Gilenya® for Pediatric MS,"for more information.If links are disabled in this email, please copy a…