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Gettng a new medical treatment

https://www.healthline.com/health/multiple-sclerosis/managing/transition-new-medication#1


Because I had no idea what happening to me nor did I even know what the letters MS represented, when it came time to begin medical treatment, my limited knowledge forced me to conform to whatever course of drugs put before me. Beta Seron, a self-injection, came into my life not long after my diagnosis. The only other two options mentioned were Copaxone and Avonex, both also injections.

I didn't know the difference. My foggy head was full and heavy with information overload.  Willing to do whatever I was told to do, I learned to stick a needle into myself, keep an injection site map, and only cry in private. Initially I had to manually inject myself, but eventually Biogen came out with an automatic needle injector, which truly made the process less difficult as long as I didn't jump at the noise the injector made upon activation. I even go excited when, after a couple of years, the rather d…
Recent posts

9/11 Where were you?

Other than in March do I post multiple times during the week, but during my morning perusal of other MS blogs, I came across this very timely blog post. It reminded me early in the morn the significance of this very day: 9/11.
Any major event of disaster prompts us to reflect on the basic question of "where were you?" There is no doubt that you know very well where you were when the planes hit the Towers.
 Standing behind my podium in room 310 at Miller Junior High School, I looked up from my testing manual to glare at the intruder who opened the classroom door. I was giving a test. My students didn't need any distractions.
That didn't stop the neighboring science teacher who came directly up to me and whispered in my ear "The Twin Towers have been attacked. Meet in Steve's office next period."
I struggled to keep an unbiased face and continue my teacherly responsibilities. Several of my students were related to first res-ponders, fire fighters, and Nationa…

Awards, AFOs, and Car Crashes

Ever had one of those days? One of those weeks?

Ever wanted to slap someone who asks such asinine questions?

Well, here I am. Slap away.

It just seems in the scheme of life, everyone has periods of severe confusion in personal existence. Not unheard of. Not uncommon. But, sometimes, we just have to refrain from a self-inflicted head banging session and scream, "Did that just happen?"

Let me begin this tirade with the "good news". Every year Readers Favorite hosts an international book contest and every year I enter my newest manuscript. So far three of my first novels have been recognized in some way. At this point my YA novel Bombs Bursting in Air is already the recipient of four awards: West Virginia Writers first place, Mom's Choice Award, Literary classics Seal of Approval, and Literary Classics winner. As a five star reviewed novel, I felt confident in placing in this year's awards and would have been a little disappointed if BBA wasn't even mentioned.…

Letters to the MonSter Chapter 2:The Etiquette of MS

Dear MonSter,





                     because...


I realize that your job is to provide horrible physical anomalies, tamper negatively with the emotional health of your targets, and basically ruin any chance of an encouraging tomorrow; but even the devil has boundaries. 

There are manners when dealing with multiple sclerosis. Society does not always abide by proper etiquette, especially when presented with differences imposed upon people; and, you, my MonSter, definitely provide a difference that requires patience, patience, and more patience.

MS Warriors tolerate you. That is the extent of your power over us. We tolerate your inconveniences.
And while we are tolerating your presence in our lives, we are also forced to do so with the hundreds of assumptions that your baggage brings. 

I learned a long time ago exactly what assuming means, and it is not an attractive image. As the chart above points out, just because I have MS doesn't mean that I am lazy or that I cannot enjoy a full and acti…

MonSter, beware!

As I scroll through my correspondence this morning, I see a trend unfolding that needs a FIX, big time.

It is so very easy for anyone to become depressed, blue, or melancholy. MS Warriors are even more susceptible to this malaise because the MonSter robs us of things others often take for granted. 


MSLuckDuck, you are a super hero. Life gets us down, for sure, but know that your thoughts and words lift me up every time I log onto your blog.


https://msluckyduck.com/



MS-Understood, I am so happy to find a fellow lover of all things autumn! I lift my pumpkin latte (If I actually had one in my hand:) in salute of your day. The best season ever is right around the  corner.


https://ms-understood.com/


As for me, the tears are a bay today. It is going to be a great day.
MonSter, beware...You do not touch me today!

Lisa

The Mechanics of MS and Walking

I don't know about you, but my walking talents tend to alter daily. At first I thought it was all about shoe choice. I have to wear flats of some sort that fit snugly to my foot and not allow any "flopping". That theory felt right, but when I realized that wearing the same shoe on consecutive days didn't necessarily work , I had to reevaluate my ward robe and  activity decisions. 

One very strange thing I have noticed about walking comfortably is the texture on which I rest my feet. Until a year or so ago, the closest shopping mall had tiled or "hard" floors, making walking not as hazardous as some shopping areas. When the mall owners revamped and changed the main walking space between individual stores  with a rugged indoor/outdoor type carpeting, I could no longer walk without stumbling. I now hate going to the mall more now than I ever did. By the time I travel from one end of the building to the other,I am totally wiped out, in pain, dizzy, and feeling 1…